Tuesday 21st May 2019
Hannah’s Story of Localised Scleroderma
Here's Hannah's story of how overlapping diagnoses of lichen sclerosis, localised scleroderma, hypermobility, fibromyalgia and irritable bowel syndrome changed her life forever.
Thursday 16th May 2019
Meet the Scientist - Professor John Pauling
Here is some insight into John Pauling, Consultant Rheumatologist at the Royal National Hospital for Rheumatic Diseases and Senior Lecturer in the Department of Pharmacy & Pharmacology.
Tuesday 14th May 2019
Ex-professional footballer Travis Munn talks about his cutting-edge treatment
Travis Munn, ex-professional footballer for Mansfield Town and Boston United, shares his experience of systemic scleroderma after his symptoms forced him to give up his sporting career.
Tuesday 7th May 2019
Jane Potter's Story
Read Jane Potter's story of using exercise and her love of sport to fight back against her Raynaud's symptoms.
Thursday 2nd May 2019
Can exercise help me?
Here at SRUK, we are strong advocates of people living with Raynaud’s and scleroderma continuing to do the things they enjoy; the benefits of exercise are countless for both physical health as well as mental health.
Thursday 25th April 2019
Registries and biobanks - what is the appeal?
Resources such as registries and biobanks have become increasingly valuable for the research of rare conditions, by building up a sample size from a wide range of locations, different age groups and so forth. Several charities and academic organisations are directing efforts towards the implementation of such resources.
Tuesday 23rd April 2019
New training programme launched for SRUK support group leaders
SRUK understands the vital role that a support network can play in a person’s medical journey, whether that comprises of family members, friends or the medical team, and regardless of the diagnosis. To facilitate the provision of support networks, SRUK has 8 support groups in the UK; the leaders were recently approached for training offered by the Scleroderma Patient-centred Intervention Network.
Thursday 18th April 2019
How we’re raising awareness in 2019
Read all about our two annual awareness campaigns in 2019. February's Raynaud's Awareness Month was a massive success, and we need your help to help us make as big a splash in June!
Friday 12th April 2019
Do we need a new way to assess Raynaud’s Phenomenon in clinical trials?
To understand the efficacy of treatment in clinical trials, participants are normally given structured diaries as a way of recording their own observations. Almost 30 years on from these measures being developed, there are questions about whether they are still fit for purpose in today’s landscape
Wednesday 10th April 2019
Supporting informal care givers: how SRUK can help
It is widely understood that the effects of scleroderma can be extremely debilitating, in severe cases limiting a person’s ability to work, socialise and partake in their favourite hobbies. In these circumstances, it is important that an individual has a strong support network.