These are 3 symptoms of scleroderma to look out for; help us tell more people about them:
- SOre or swollen fingers
- RAynaud's Phenomenon
- REflux and heartburn
THINK SO RARE
We are here for you.
Whether you are newly diagnosed or have been living with Scleroderma and Raynaud's for years, we can help. SRUK are the only UK charity providing support and information and funding research into Scleroderma and Raynaud's.
"When I discovered the SRUK website, it was an absolute lifeline and it was so great to know that I wasn’t alone." Sara
SRUK is dedicated to improving the lives of people with scleroderma and Raynaud's phenomenon
Our mission is to improve the lives of everyone affected by scleroderma and Raynaud's. We do this by investing in research, improving awareness and understanding of the conditions and providing information and support to all those affected.
Join us on 11th September to learn more about Scleroderma and Raynaud’s from expert speakers. Find out more about advances in treatments, tips for self-management, new research and so much more. This interactive conference experience gives you the chance to ask questions, speak to and connect with others in the community, interact with our exhibitors and relax in our health & wellbeing zone - all from the comfort of your own home!
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SRUK latest news
See all newsFriday 17th September 2021
2021 Virtual Conference Round-Up
A series of talks took place throughout the day, covering areas of research funded by SRUK, advice on symptom management, and discussions about the future. This article offers a brief overview of each talk as a taster, and in the coming months they will be made available online.
Thursday 16th September 2021
Living with lung disease: Georgina's story
September is Pulmonary Fibrosis Awareness Month. Pulmonary fibrosis (PF) is also known as interstitial lung disease (ILD) and is the most common form of lung involvement in SSc. This can occur at any time, although early detection often leads to much better outcomes. This is Georgina’s story of living with lung disease, which has a dramatic impact upon her life.
Wednesday 1st September 2021
The OCTAVE Study: Scaling up our understanding of vaccine effectiveness in people living with autoimmune conditions
OCTAVE study reveals how effective COVID-19 vaccinations are in immunocompromised participants
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