SRUK is dedicated to improving the lives of people with scleroderma and Raynaud's phenomenon

Our mission is to improve the lives of everyone affected by scleroderma and Raynaud's. We do this by investing in research, improving awareness and understanding of the conditions and providing information and support to all those affected.

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10 million people in the UK are living with Raynaud's, this February help us take action.  We want everyone with Raynaud's to get the support they need and and you are key to making that happen.  Join us and take action; tell your story, share this animation, take the online test, raise funds. 

Let's give Raynaud's the attention it deserves and let's make change happen.

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Fundraise for Raynaud's Awareness Month 

Organise a Catch up with a Cuppa to raise funds and awareness, at home in your workplace or in your local community - you could even get a special SRUK mug! 

Perhaps you prefer to run, walk or cycle to raise funds and awareness - whatever you want to do we are here to support you.  

Take Action, Raise Funds, Make a Huge Difference

SRUK latest news

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Tuesday 19th December 2023

The Mouth in Scleroderma - Tools to Help Dentists Better Understand Your Condition

In 2021 SRUK funded a research project led by Professor Liz Walker, based at the University of Hull, entitled 'Scleroderma in the Mouth: Improving Pathways to Care'. The project focusses on improving oral and dental care in Scleroderma to help improve quality of life. The team have recently produced some useful materials to foster greater awareness of the oral manifestations of Scleroderma amongst dentists. Read on to access a video and information card which you can show to your dentist to help them learn more about your condition and how it affects your oral health.

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Monday 18th December 2023

Time to move on from 'Doctor Knows Best'

SRUK Chief Executive says: ‘Time to move on from Doctor Knows Best’ As study finds Patient views not always valued

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Monday 18th December 2023

EULAR publish new recommendations for non-pharmacological management in Systemic Sclerosis

EULAR have recently developed new recommendations regarding non-pharmacological management of Systemic Sclerosis. Non-pharmacological management approaches aim to ease disease symptoms and improve quality of life, or help to prevent a patient’s condition from worsening. By working with healthcare professionals and patients, EULAR have published a new set of recommendations, which have the potential to improve the management of Scleroderma and the quality of life of patients. Read on to find out more!

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