These are 3 symptoms of scleroderma to look out for; help us tell more people about them:
- SOre or swollen fingers
- RAynaud's Phenomenon
- REflux and heartburn
THINK SO RARE
We are here for you.
Whether you are newly diagnosed or have been living with Scleroderma and Raynaud's for years, we can help. SRUK are the only UK charity providing support and information and funding research into Scleroderma and Raynaud's.
"When I discovered the SRUK website, it was an absolute lifeline and it was so great to know that I wasn’t alone." Sara
SRUK is dedicated to improving the lives of people with scleroderma and Raynaud's phenomenon
Our mission is to improve the lives of everyone affected by scleroderma and Raynaud's. We do this by investing in research, improving awareness and understanding of the conditions and providing information and support to all those affected.
Join us on 11th September to learn more about Scleroderma and Raynaud’s from expert speakers. Find out more about advances in treatments, tips for self-management, new research and so much more. This interactive conference experience gives you the chance to ask questions, speak to and connect with others in the community, interact with our exhibitors and relax in our health & wellbeing zone - all from the comfort of your own home!
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SRUK latest news
See all newsThursday 22nd July 2021
Touching on Touchscreens - Making Technology More Accessible for People With Scleroderma
Are you reading this from a touchscreen device? Using touchscreen technology is something many of us do every day, without even thinking about it. But what happens to the people who have conditions that make touchscreens tough?
Friday 16th July 2021
Systemic sclerosis-associated pulmonary arterial hypertension
Systemic sclerosis-associated pulmonary arterial hypertension (SSC-PAH) occurs when fibrosis causes the walls of the pulmonary arteries to thicken, raising their blood pressure and placing additional strain upon the heart. The early signs of SSc-PAH include persistent breathlessness, that may be so mild at first that you hardly notice it. If this sounds familiar, tell your doctor.
Thursday 8th July 2021
Collaboration is Key: Developing a New Diagnostic Tool for Scleroderma
“We are limited by current assessment tools such as the skin score, which is limited by subjectivity, as well as the time needed for training and standardisation. We need to make sure that new treatments are evaluated in the best and most robust way so that we can make more progress and discontinue approaches that do not work.” Prof. Chris Denton
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