Become a Support Group Leader

“I set up the Birmingham group because I very selfishly wanted to know all I could about this disease. I tried searching the internet first. If I wanted to search the internet, doctors told me only to go on the NHS sites. There was nothing around Birmingham or the surrounding area, so I needed and wanted to see folks who could shed light on what was happening to me as well as seeing what this condition could possibly develop into”. Avtar

Do you want to help those living with scleroderma and Raynaud’s? If so, why not set up a Support Group in your local area?

Local support groups can offer much needed information and support for anyone affected by Scleroderma and Raynaud’s. Starting a local support group in an area that does not have one, can give those whose lives are affected by Scleroderma and Raynaud’s the chance to meet and talk with others who share and understand their situation.

Why become a Support Group Leader?

We are always looking for willing and dedicated volunteers to join our increasing number of Support Groups Leaders throughout the UK. Being a group leader can be incredibly rewarding. By setting up a group in your local area you will be providing support to individuals and families in your local area living with the day-to-day challenges of Scleroderma and Raynaud’s.

What do you need to know?

You will be required to source a venue, promote, and facilitate a group at regular intervals throughout the year, with the help, advice and support of the Scleroderma and Raynaud’s UK (SRUK). Support Group Leaders are not expected to give any medical advice to those in the group but are there to provide support and advice based on previous experiences. Our Information and Support Manager is on hand to help you in all your support group activities. From producing posters, to promoting the group on our social media platforms we will be there every step of the way to help make your group a great success. We can cover reasonable venue costs and any approved out of pocket expenses.

What training is provided? 

All support group leaders will receive an induction to SRUK. An SRUK training programme will provided at some point to help with development of your skills to run an effective support group. If your application is successful, you will be invited to take part in an induction. All reasonable expenses are paid for by SRUK. 

Sounds good? Get in touch today!

If you would like to start a group in your area, please get in touch with our Information and Support Manager at to request a role description and application form.