Privacy statement

At Scleroderma & Raynaud's UK (SRUK) we are committed to protecting your privacy. This statement describes how SRUK collects and uses personal information about people who visit our websites. The terms of this statement may change, so please check it from time to time.

If you have any queries about this privacy statement please contact Scleroderma & Raynaud's UK, Bride House, 18 -20 Bride Lane, EC4Y 8EE or email info@sruk.co.uk

How do we collect information?

We obtain personal information from you when you enquire about our activities, register with us, sign-up to our communications, make a donation to us, ask a question about scleroderma or Raynaud's or otherwise provide us with personal information. We may also receive information about you from third parties, for example from our service providers or from a friend who wants to tell you about our websites or the fundraising activities we carry out.

What information do we collect?

The personal information we collect might include name, date of birth, email address, postal address, telephone number and credit/debit card details. We may also collect health information if you tell us about your condition or the condition of a friend or relative.

We also gather general information about the use of our websites, such as which pages users visit most often and which services, events or facilities are of most interest. We may also track which pages users visit when they click on links in SRUK emails. We may use this information to personalise the way our websites are presented when users visit them, to make improvements to our websites and to ensure we provide the best service for users. Wherever possible we use aggregated or anonymous information, which does not identify individual visitors to our websites.

How do we use this information?

We will use your personal information:

  • to provide you with the services, products or information you have requested;
  • to create an account for you if you register with us;
  • for administration purposes;
  • to further our charitable aims, including for fundraising activities.

As part of this, we may analyse the personal information we collect to create a profile of your interests and preferences so that we can contact you in the most appropriate way and with the most relevant information. Where relevant, we may also assess your personal information for the purposes of fraud and credit risk reduction.

If you enter your contact details in one of our online registration forms, we may use this information to contact you even if you don't "send" or "submit" the form. We will only do this to see if we can help with any problems you might be experiencing with the form or with our websites.

We may need to share your information with our service providers for the purposes described above.

Your choices

You have a choice about whether you want to receive information about our progress and fundraising activities. We will not use your personal information for marketing purposes if you have indicated that you do not wish to be contacted. You can change your marketing preferences at any time by contacting Scleroderma & Raynaud's UK, Bride House, 18 -20 Bride Lane, EC4Y 8EE or email info@sruk.co.uk

Under 16s

SRUK is concerned to protect the privacy of children aged under 16. Where appropriate we will seek consent from a parent or guardian before collecting personal information about a child aged under 16.

Do we use cookies?

Please refer to our cookie policy for details of how we use cookies and the type of cookies served through our web sites.

How do we protect personal information?

All of our online forms are protected by encryption. We also use a secure server when you make a donation or payment via our websites. We take appropriate measures to ensure that the personal information disclosed to us is kept secure, accurate and up to date and kept only for so long as is necessary for the purposes for which it is used.

Will we disclose the information we collect to outside parties?

As indicated above, we may pass your information to our service providers for the purpose of completing tasks and providing services to you. Where we use service providers we will make sure there are appropriate controls in place.

We may also need to disclose your information if required by law (for example to government bodies and law enforcement agencies) or if we have your permission to do so.

We will not sell any of your personal information or disclose to any parties who do not improve service provision.

Your consent

By providing us with your personal information, including sensitive information such as on your health, you consent to the collection and use of this in accordance with the purposes described in this Privacy statement.

Right of access

If you have created an account with us, you can sign into your account to access and update your information.

You have the right to ask for a copy of the information we hold about you and to have any inaccuracies in your information corrected. If you wish to exercise these rights, contact Scleroderma & Raynaud's UK, Bride House, 18 -20 Bride Lane, EC4Y 8EE or email info@sruk.co.uk

Links

Our websites may include links to websites run by other organisations. SRUK is not responsible for the privacy practices of these other websites so you should read their privacy policies carefully.

Changes

If your personal details change, please help us to keep your information up to date by notifying us.

We may change the terms of this privacy statement from time to time. If we do so, we will post the changes here so please check from time to time. By continuing to use our websites you will be deemed to have accepted such changes.