Up to 10 million people in the UK have a form of Raynaud's and yet our research shows that nearly half of UK adults don’t know any of the signs of Raynaud’s disease. That's why it's so important that we continue to raise awareness.
February is Raynaud's Awareness Month.
You can get involved with our campaign by writing to your MP to demand help with heating costs for people with Raynaud's.
You can also help by spreading the word, hosting a Catch up with a Coffee, following us on social media and keeping the conversation going.
In November 2022, over 1,600 people living with Raynaud's answered our survey about the impact of rising energy costs and you told us:
- 77% of you are experiencing more Raynaud’s attacks due to stress caused by the current cost of living crisis
- 76% have suffered a painful Raynaud’s attack because you've been too worried about your energy bills to turn the heating on
- The number of people with Raynaud’s paying over £700 per month for their energy has almost doubled in the last year.
In response, we wrote to the Chancellor of the Exchequer to demand help; we are continuing with our campaign and now we need you to add your voice to this and write to your MP to demand more support for people living with Raynaud's and struggling with rising energy costs.
Too many people just live with Raynaud's without knowing what it is and how they can manage the symptoms better. For roughly 300,000 of them it's a sign of an underlying condition. So we don't want people to ignore it any more. By sharing your stories of what it is like to live with Raynaud's we are encouraging others to take action.
Les lived with Raynaud's for over 50 years without knowing what it was - he found out after taking our online test, that's why he put together this video below to help us raise awareness.
Jody shares her experience of a typical day living with Raynaud's
Organise a Catch up with a Coffee event to raise funds and awareness. Invite friends, neighbours, colleagues and family, have some tea, coffee, cake - whatever takes your fancy and ask for donations.
Who can resist cake and good conversation?! We are here to help you make it a success
Do you have Raynaud's?
Raynaud's is a common condition affecting up to 10 million people in the UK. If you often have cold hands or feet, could you be living with this condition?
The Test is not designed for children. If your child has any Raynaud’s symptoms, they should see their doctor.
Help us raise awareness by downloading our materials. Or contact us to get some printed copies
Help us raise awareness, download this poster and display it at work, in your local church, GP surgery, library. Wherever you think people will see it and benefit!
Download this handy flyer that could be left on a counter, a desk, table or a local noticeboard. Help us spread the word far and wide!
To find out more about Raynaud's, including signs and symptoms, managing symptoms and getting further support click to download our Know Raynaud's Leaflet.
Know Raynaud's Leaflet
Raynaud's - getting diagnosed
The first step to getting a diagnosis is to book an appointment with your GP
Find out more
All you need to know about Raynaud's, from getting diagnosed to managing symptoms
Find out more
Personal Stories - Raynaud's
Personal Raynaud's Stories from our Community
Find out more