Suzie's Raynaud's Story
Paramedic Suzie didn't know she had Raynaud's until a colleague mentioned the possibility.
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Personal stories - Raynaud's
We are incredibly grateful to everyone who has shared with us their personal stories of living with Raynaud's and scleroderma. As well as continuing to raise awareness, sharing experiences and talking about all the various aspects of living with these conditions provides an essential resource that is always available when someone is looking for some information and support.
Could you share your story with us? Everyone's journey is different so whatever your experience, we would love to hear from you. Please get in touch with us if you would like some more information, and we will be very happy to help you.
Steph's Raynaud's Story
Steph has been living with Raynaud's since she was a teenager
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Caroline's Story
For Caroline, a 40-year-old veterinary surgeon from Milton Keynes, the winter months can be problematic.
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Amy's story
Teenager Amy talks about her fight with Raynaud’s
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William's Raynaud's story
William Bloodworth, Age 9, from Sheffield doesn't let his Raynaud's get in the way of his love of sports.
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Meet Chloe
Meet Chloe who has Raynaud's
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Chelsea's story
Read Chelsea's story of living with extreme Raynaud's.
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Claire and Lewis's story
Claire and Lewis share the challenges of doing every-day tasks
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I have a story to tell
Share your stories of Scleroderma and Raynaud's.
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Diane's story
Diane's story of Secondary Raynaud's.
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Lorraine's Raynaud's story
Hear Lorraine's experiences of Raynaud's, and later developing Scleroderma.
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Personal Stories - Scleroderma
Our Community share their personal Scleroderma stories
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Deb's Raynaud's Story
Deb lived with Raynaud's for many years before being diagnosed.
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Sharon's Story
Sharon is newly diagnosed with Raynaud's and Scleroderma and shares her story of how it affects her everyday life.
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SRUK latest news
See all newsTuesday 1st April 2025
SRUK’s response to the Government’s Spring Statement
The impact of the Government’s recent Spring Statement will be felt across our community. Many people living with Scleroderma and Raynaud's could face new hardship, as they are forced to rely on disability benefits and financial help just to get by.
Thursday 14th November 2024
Be Part Of The Answer
This Raynaud’s Awareness Month, we are calling on the public to #BePartOfTheAnswer and join the thousands of people already involved in what we hope will be the largest-ever study into Raynaud's. You can help us by sharing the online test with your own family and friends, and encourage them to find out if they could be living with Raynaud's.
Wednesday 16th October 2024
Heat Holders and SRUK - The Perfect Partnership
Together, Heat Holders and SRUK can combine their expertise, passion, and resources to make a meaningful difference, offering practical solutions to those who are most affected by the cold.