Suzie's Raynaud's Story
Paramedic Suzie didn't know she had Raynaud's until a colleague mentioned the possibility.
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We are incredibly grateful to everyone who has shared with us their personal stories of living with Raynaud's and scleroderma. As well as continuing to raise awareness, sharing experiences and talking about all the various aspects of living with these conditions provides an essential resource that is always available when someone is looking for some information and support.
Could you share your story with us? Everyone's journey is different so whatever your experience, we would love to hear from you. Please get in touch with us if you would like some more information, and we will be very happy to help you.
Paramedic Suzie didn't know she had Raynaud's until a colleague mentioned the possibility.
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Steph has been living with Raynaud's since she was a teenager
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For Caroline, a 40-year-old veterinary surgeon from Milton Keynes, the winter months can be problematic.
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Teenager Amy talks about her fight with Raynaud’s
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William Bloodworth, Age 9, from Sheffield doesn't let his Raynaud's get in the way of his love of sports.
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Meet Chloe who has Raynaud's
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Read Chelsea's story of living with extreme Raynaud's.
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Claire and Lewis share the challenges of doing every-day tasks
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Share your stories of Scleroderma and Raynaud's.
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Diane's story of Secondary Raynaud's.
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Hear Lorraine's experiences of Raynaud's, and later developing Scleroderma.
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Our Community share their personal Scleroderma stories
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Deb lived with Raynaud's for many years before being diagnosed.
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Sharon is newly diagnosed with Raynaud's and Scleroderma and shares her story of how it affects her everyday life.
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Wednesday 28th February 2024
As high bills continue to threaten the health of those living with the debilitating condition; SRUK is appealing to energy companies to provide financial assistance to them.
Tuesday 19th December 2023
In 2021 SRUK funded a research project led by Professor Liz Walker, based at the University of Hull, entitled 'Scleroderma in the Mouth: Improving Pathways to Care'. The project focusses on improving oral and dental care in Scleroderma to help improve quality of life. The team have recently produced some useful materials to foster greater awareness of the oral manifestations of Scleroderma amongst dentists. Read on to access a video and information card which you can show to your dentist to help them learn more about your condition and how it affects your oral health.
Monday 18th December 2023
SRUK Chief Executive says: ‘Time to move on from Doctor Knows Best’ As study finds Patient views not always valued