Suzie's Raynaud's Story
Paramedic Suzie didn't know she had Raynaud's until a colleague mentioned the possibility.
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Personal stories - Raynaud's
We are incredibly grateful to everyone who has shared with us their personal stories of living with Raynaud's and scleroderma. As well as continuing to raise awareness, sharing experiences and talking about all the various aspects of living with these conditions provides an essential resource that is always available when someone is looking for some information and support.
Could you share your story with us? Everyone's journey is different so whatever your experience, we would love to hear from you. Please get in touch with us if you would like some more information, and we will be very happy to help you.
Steph's Raynaud's Story
Steph has been living with Raynaud's since she was a teenager
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Sharon's Story
Sharon is newly diagnosed with Raynaud's and Scleroderma and shares her story of how it affects her everyday life.
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Amy's story
Teenager Amy talks about her fight with Raynaud’s
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William's Raynaud's story
William Bloodworth, Age 9, from Sheffield doesn't let his Raynaud's get in the way of his love of sports.
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Meet Chloe
Meet Chloe who has Raynaud's
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Chelsea's story
Read Chelsea's story of living with extreme Raynaud's.
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Claire and Lewis's story
Claire and Lewis share the challenges of doing every-day tasks
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I have a story to tell
Share your stories of Scleroderma and Raynaud's.
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Diane's story
Diane's story of Secondary Raynaud's.
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Lorraine's Raynaud's story
Hear Lorraine's experiences of Raynaud's, and later developing Scleroderma.
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Personal Stories - Scleroderma
Our Community share their personal Scleroderma stories
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Deb's Raynaud's Story
Deb lived with Raynaud's for many years before being diagnosed.
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SRUK latest news
See all newsTuesday 28th June 2022
‘Olive Ayoub Intermediate to Late-Stage Post-Doctoral Research Fellowship’ Opens for Applications on 29th June
On 29th June, Scleroderma & Raynaud’s UK will open applications for the Olive Ayoub Intermediate to Late-Stage Post-doctoral Research Fellowship, which will enable one exceptional, non-tenured post-doctoral researcher to transition from postdoc to research leader in the field of scleroderma.
Friday 24th June 2022
Identifying Scleroderma Patients at Risk of Pulmonary Hypertension - US Study Provides Potential Biomarker for the Condition
A new US study has found that scleroderma patients who test positive for ‘anti-Th/To antibodies’ are at higher risk of developing pulmonary hypertension (PH) in comparison to other patients, which could enable the earlier detection and more effective management of one of scleroderma’s most serious complications.
Friday 17th June 2022
Mum Whose Daughters Have Scleroderma Helps SRUK Produce Schools Guide
Both of Alison's daughters have scleroderma, and having experienced the lack of understanding around the condition, she set out to help SRUK create a guide to scleroderma for schools.