Suzie's Raynaud's Story
Paramedic Suzie didn't know she had Raynaud's until a colleague mentioned the possibility.
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Personal stories - Raynaud's
We are incredibly grateful to everyone who has shared with us their personal stories of living with Raynaud's and scleroderma. As well as continuing to raise awareness, sharing experiences and talking about all the various aspects of living with these conditions provides an essential resource that is always available when someone is looking for some information and support.
Could you share your story with us? Everyone's journey is different so whatever your experience, we would love to hear from you. Please get in touch with us if you would like some more information, and we will be very happy to help you.
Steph's Raynaud's Story
Steph has been living with Raynaud's since she was a teenager
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Caroline's Story
For Caroline, a 40-year-old veterinary surgeon from Milton Keynes, the winter months can be problematic.
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Amy's story
Teenager Amy talks about her fight with Raynaud’s
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William's Raynaud's story
William Bloodworth, Age 9, from Sheffield doesn't let his Raynaud's get in the way of his love of sports.
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Meet Chloe
Meet Chloe who has Raynaud's
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Chelsea's story
Read Chelsea's story of living with extreme Raynaud's.
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Claire and Lewis's story
Claire and Lewis share the challenges of doing every-day tasks
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I have a story to tell
Share your stories of Scleroderma and Raynaud's.
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Diane's story
Diane's story of Secondary Raynaud's.
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Lorraine's Raynaud's story
Hear Lorraine's experiences of Raynaud's, and later developing Scleroderma.
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Personal Stories - Scleroderma
Our Community share their personal Scleroderma stories
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Deb's Raynaud's Story
Deb lived with Raynaud's for many years before being diagnosed.
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Sharon's Story
Sharon is newly diagnosed with Raynaud's and Scleroderma and shares her story of how it affects her everyday life.
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SRUK latest news
See all newsTuesday 28th November 2023
Sharing Data to Improve Lives: The SRUK Patient Registry Survey
SRUK is developing a Patient Registry, with the aim of improving outcomes for people diagnosed with Scleroderma or Raynaud's. Our Registry will be a secure, anonymous database, containing health information about people living with the conditions. It will be used to improve our understanding of Scleroderma and Raynaud's and how different people are affected over time, to help accelerate research into new and better treatments designed to improve quality of life. Read on to find out what we learned through the SRUK Patient Registry Survey, and how it will help shape our Patient Registry.
Wednesday 22nd November 2023
SRUK's response to the Autumn Statement
SRUK asks the Chancellor to consider the impact of changes to disability benefits on people with scleroderma and we renew our call for more support with energy bills for those that need it most.
Tuesday 21st November 2023
Government must expand Cost of Living Payments to protect health of those living with Raynaud's Phenomenon
Ahead of the Chancellor's Autumn Statement we are calling on the government to expand its Cost of Living Payment criteria to include people living with Raynaud’s Phenomenon.