Scleroderma is a complex, little-known and often poorly-understood condition, that affects different people in different ways. There are currently around 19,000 people in the UK who are living with scleroderma, with 1,300 people newly-diagnosed every year.  SRUK provide support and information through our online programme of support, our printed publications, the Helpline and our annual conference.  We encourage conversations, ask questions and advocate on your behalf. 

We are the only UK charity funding essential scientific research into scleroderma and Raynaud’s to improve diagnosis, treatments and quality of life.  Our goal is to improve the lives of everyone within our community and ultimately to find a cure. Our research strategy guides the projects we fund and ensures everything we do is shaped by what is best for our community.  Find out more here

Scleroderma - know the symptoms

More than 25% of people with scleroderma in the UK have waited three years or more before receiving an accurate diagnosis. The following three symptoms may indicate scleroderma, so if you recognise all of these, it is important to book an appointment with your GP:

  • Sore or swollen fingers
  • Raynaud's phenomenon; a condition where fingers and toes change colour with temperature changes, stress or anxiety
  • Reflux or heartburn

Get Involved this June - we can't do it without you!

Help us spread the word, you can share your own story or share our social media posts to keep the conversations going. You can also join our walk or organise your own fundraising event to keep our work going. 

The SRUK Walk is your walk, your way. Whether it's 10 steps at home, 10 miles in your local park, on your own or with a group  -  help us reach our £19,000 target to fund vital support, information and research. 

June Webinars 

We have two interesting webinars for you 

9th June:   ‘The role of physical activity in managing fatigue in people with Scleroderma’, with Will Gregory, 3pm – 4pm

This webinar looked at appropriate exercise/activity to maintain and improve stamina, strength and flexibility. It is essential that the muscles are as efficient as possible to reduce strain on the heart and lungs. There were tips on exercising safely, as well as accessing online exercise resources, adapting your exercises, managing fatigue and pacing.

You can watch it on our YouTube Channel 

21st June:  ‘Living well with fatigue in people with Scleroderma’, with Lucy Reeve, 11am – 12pm

This webinar explored the influence of fatigue on peoples’ daily lives and how to use pacing, planning, prioritising and problem solving to manage daily activities more efficiently. Lucy also discussed how to adapt your environment to ensure it is helping you rather than hindering you. 

You can watch it on our YouTube Channel