- Sore or swollen fingers
- Raynaud's phenomenon; a condition where fingers and toes change colour with temperature changes, stress or anxiety
- Reflux or heartburn
June is Scleroderma Awareness Month
Throughout June we raise awareness of scleroderma across the media and the general public to help increase understanding, highlight symptoms to look out for and try to make it part of a national conversation. We do this with your help and by telling your stories.
Scleroderma is a complex, little-known and often poorly-understood condition, that affects different people in different ways. There are currently around 19,000 people in the UK who are living with scleroderma, with 1,300 people newly diagnosed every year. SRUK provide support and information through our online programme of support, our printed publications, the Helpline and our annual conference. We encourage conversations, ask questions and advocate on your behalf.
We are the only UK charity funding essential scientific research into scleroderma and Raynaud’s to improve diagnosis, treatments and quality of life. Our goal is to improve the lives of everyone within our community and ultimately to find a cure. Our research strategy guides the projects we fund and ensures everything we do is shaped by what is best for our community. Find out more here
Scleroderma - know the symptoms
More than 25% of people with scleroderma in the UK have waited three years or more before receiving an accurate diagnosis. The following three symptoms may indicate scleroderma, so if you recognise all of these, it is important to book an appointment with your GP:
Get Involved this June - we can't do it without you!
Help us spread the word, you can share your own story or share our social media posts to keep the conversations going. You can also join our walk or organise your own fundraising event to keep our work going.
The SRUK Walk is your walk, your way. Whether it's 10 steps at home, 10 miles in your local park, on your own or with a group - help us reach our £19,000 target to fund vital support, information and research.
Remember a loved one and raise awareness
Share a special message on our Scleroderma Awareness Month dedication page. Every memory shared helps continue the fight in raising awareness about scleroderma.
SRUK latest newsSee all news
Tuesday 28th November 2023
Sharing Data to Improve Lives: The SRUK Patient Registry Survey
SRUK is developing a Patient Registry, with the aim of improving outcomes for people diagnosed with Scleroderma or Raynaud's. Our Registry will be a secure, anonymous database, containing health information about people living with the conditions. It will be used to improve our understanding of Scleroderma and Raynaud's and how different people are affected over time, to help accelerate research into new and better treatments designed to improve quality of life. Read on to find out what we learned through the SRUK Patient Registry Survey, and how it will help shape our Patient Registry.
Wednesday 22nd November 2023
SRUK's response to the Autumn Statement
SRUK asks the Chancellor to consider the impact of changes to disability benefits on people with scleroderma and we renew our call for more support with energy bills for those that need it most.
Tuesday 21st November 2023
Government must expand Cost of Living Payments to protect health of those living with Raynaud's Phenomenon
Ahead of the Chancellor's Autumn Statement we are calling on the government to expand its Cost of Living Payment criteria to include people living with Raynaud’s Phenomenon.