- Sore or swollen fingers
- Raynaud's phenomenon; a condition where fingers and toes change colour with temperature changes, stress or anxiety
- Reflux or heartburn
June is Scleroderma Awareness Month
Throughout June we raise awareness of scleroderma across the media and the general public to help increase understanding, highlight symptoms to look out for and try to make it part of a national conversation. We do this with your help and by telling your stories.
Scleroderma is a complex, little-known and often poorly-understood condition, that affects different people in different ways. There are currently around 19,000 people in the UK who are living with scleroderma, with 1,300 people newly diagnosed every year. SRUK provide support and information through our online programme of support, our printed publications, the Helpline and our annual conference. We encourage conversations, ask questions and advocate on your behalf.
We are the only UK charity funding essential scientific research into scleroderma and Raynaud’s to improve diagnosis, treatments and quality of life. Our goal is to improve the lives of everyone within our community and ultimately to find a cure. Our research strategy guides the projects we fund and ensures everything we do is shaped by what is best for our community. Find out more here
Scleroderma - know the symptoms
More than 25% of people with scleroderma in the UK have waited three years or more before receiving an accurate diagnosis. The following three symptoms may indicate scleroderma, so if you recognise all of these, it is important to book an appointment with your GP:
Get Involved this June - we can't do it without you!
Help us spread the word, you can share your own story or share our social media posts to keep the conversations going. You can also join our walk or organise your own fundraising event to keep our work going.
The SRUK Walk is your walk, your way. Whether it's 10 steps at home, 10 miles in your local park, on your own or with a group - help us reach our £19,000 target to fund vital support, information and research.
Remember a loved one and raise awareness
Share a special message on our Scleroderma Awareness Month dedication page. Every memory shared helps continue the fight in raising awareness about scleroderma.
SRUK latest news
See all newsWednesday 28th February 2024
SRUK says Energy companies must step up support for people with Raynaud's.
As high bills continue to threaten the health of those living with the debilitating condition; SRUK is appealing to energy companies to provide financial assistance to them.
Tuesday 19th December 2023
The Mouth in Scleroderma - Tools to Help Dentists Better Understand Your Condition
In 2021 SRUK funded a research project led by Professor Liz Walker, based at the University of Hull, entitled 'Scleroderma in the Mouth: Improving Pathways to Care'. The project focusses on improving oral and dental care in Scleroderma to help improve quality of life. The team have recently produced some useful materials to foster greater awareness of the oral manifestations of Scleroderma amongst dentists. Read on to access a video and information card which you can show to your dentist to help them learn more about your condition and how it affects your oral health.
Monday 18th December 2023
Time to move on from 'Doctor Knows Best'
SRUK Chief Executive says: ‘Time to move on from Doctor Knows Best’ As study finds Patient views not always valued