Thank you for joining us for Scleroderma Awareness Month! Throughout June, we will be taking action to raise awareness and understanding of scleroderma, among the public and healthcare professionals.
We can't do this without you, and there are lots of steps you can take to get involved before World Scleroderma Day on 29 June. Will you take action with us this June?
The SRUK Walk is your walk, your way, and we are calling on our community to join us this summer. Every step counts, whether it's 10 steps at home or 10 miles. Your steps will help us to keep on funding vital support, information and research.
Could you share your own story with us? This year, we are asking our community: what does scleroderma mean for you? What do you feel that people need to know?
Sharing your stories about how this little known condition affects everyday life helps us to break down barriers and increase knowledge and understanding. Your words could lead to someone being diagnosed sooner, and you can remain anonymous if you prefer.
Family, friends and loved ones are also part of the journey. The effects of scleroderma are often far-reaching, so we need to add their voices to this conversation and spread the message even further.
To find out more, please click here or contact us.
Share one of our posts and add a comment to let your friends and followers know that June is Scleroderma Awareness Month, and why this is so important to you. Find us on Facebook, Instagram and X by searching wearesruk
Rising energy prices mean that many of our community are still struggling to keep warm. We need your help to keep on campaigning for recognition and for more support. You can get involved by writing to your MP and to your energy supplier, to let them know that our community still needs their support.
By sharing our messages about scleroderma, you can help raise awareness for vital change.
In scleroderma, early diagnosis often leads to better outcomes, so awareness is crucial. By sharing this video, you can help. The sooner someone is diagnosed the quicker they can be treated, which can make a big difference.
Share a special message on our Scleroderma Awareness Month dedication page. Every memory shared helps continue the fight in raising awareness about scleroderma.
Every action makes a difference. Whatever you can do for Scleroderma awareness, from organising your own SRUK Walk to sharing our social media posts, we would love to hear from you. The following information may be helpful when you are talking to others about scleroderma and its impact, and the work of SRUK.
Scleroderma is a complex, little-known and often poorly-understood condition, that affects different people in different ways. There are currently around 19,000 people in the UK who are living with scleroderma, with 1,300 people newly diagnosed every year. SRUK provide support and information through our online programme of support, our printed publications, the Helpline and our annual conference. We encourage conversations, ask questions and advocate on your behalf.
We are the only UK charity funding essential scientific research into Scleroderma and Raynaud’s to improve diagnosis, treatments and quality of life. Our goal is to improve the lives of everyone within our community and ultimately to find a cure. Our research strategy guides the projects we fund and ensures everything we do is shaped by what is best for our community. Find out more here
Find out how your legacy gift could help
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Find out all the ways you can donate
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Fundraise for SRUK, your way.
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SRUK fund vital, innovative scientific research into the causes, progression, and treatment of both Scleroderma and Raynaud’s. Read all the latest news here.
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SRUK works in partnership with suppliers who will offer a charity donation, discounts or free shipping to our community.
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World Scleroderma Day takes place on 29 June.
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