- Sore or swollen fingers
- Raynaud's phenomenon; a condition where fingers and toes change colour with temperature changes, stress or anxiety
- Reflux or heartburn
June is Scleroderma Awareness Month
Throughout June we raise awareness of scleroderma across the media and the general public to help increase understanding, highlight symptoms to look out for and try to make it part of a national conversation. We do this with your help and by telling your stories.
Scleroderma is a complex, little-known and often poorly-understood condition, that affects different people in different ways. There are currently around 19,000 people in the UK who are living with scleroderma, with 1,300 people newly diagnosed every year. SRUK provide support and information through our online programme of support, our printed publications, the Helpline and our annual conference. We encourage conversations, ask questions and advocate on your behalf.
We are the only UK charity funding essential scientific research into scleroderma and Raynaud’s to improve diagnosis, treatments and quality of life. Our goal is to improve the lives of everyone within our community and ultimately to find a cure. Our research strategy guides the projects we fund and ensures everything we do is shaped by what is best for our community. Find out more here
Scleroderma - know the symptoms
More than 25% of people with scleroderma in the UK have waited three years or more before receiving an accurate diagnosis. The following three symptoms may indicate scleroderma, so if you recognise all of these, it is important to book an appointment with your GP:
Get Involved this June - we can't do it without you!
Help us spread the word, you can share your own story or share our social media posts to keep the conversations going. You can also join our walk or organise your own fundraising event to keep our work going.
The SRUK Walk is your walk, your way. Whether it's 10 steps at home, 10 miles in your local park, on your own or with a group - help us reach our £19,000 target to fund vital support, information and research.
Remember a loved one and raise awareness
Share a special message on our Scleroderma Awareness Month dedication page. Every memory shared helps continue the fight in raising awareness about scleroderma.
SRUK latest news
See all newsTuesday 28th June 2022
‘Olive Ayoub Intermediate to Late-Stage Post-Doctoral Research Fellowship’ Opens for Applications on 29th June
On 29th June, Scleroderma & Raynaud’s UK will open applications for the Olive Ayoub Intermediate to Late-Stage Post-doctoral Research Fellowship, which will enable one exceptional, non-tenured post-doctoral researcher to transition from postdoc to research leader in the field of scleroderma.
Friday 24th June 2022
Identifying Scleroderma Patients at Risk of Pulmonary Hypertension - US Study Provides Potential Biomarker for the Condition
A new US study has found that scleroderma patients who test positive for ‘anti-Th/To antibodies’ are at higher risk of developing pulmonary hypertension (PH) in comparison to other patients, which could enable the earlier detection and more effective management of one of scleroderma’s most serious complications.
Friday 17th June 2022
Mum Whose Daughters Have Scleroderma Helps SRUK Produce Schools Guide
Both of Alison's daughters have scleroderma, and having experienced the lack of understanding around the condition, she set out to help SRUK create a guide to scleroderma for schools.