Tuesday 30th November 2021
RAIRDA survey findings on access to third dose
RAIRDA and its member charities are calling for urgent government action to address concerns about the roll-out of third primary doses for the COVID-19 vaccine.
Tuesday 19th October 2021
UPDATED: Breaking News - NICE approve Nintedanib for use in PF-ILD, which includes SSc Interstitial Lung Disease
SRUK are pleased to announce that NICE have approved the use of Nintedanib in treating progressive fibrosing interstitial lung disease (PF-ILD)!
Friday 15th October 2021
Stratified Medicine - The Latest SRUK Grant Call
What is stratified medicine? Stratified medicine is also known as personalised medicine and works by dividing patients within the larger group into subgroups by factors that make their condition different.
Friday 1st October 2021
Creating Clinical Trials for Children
: Affecting around 200 children in the UK, Juvenile Localised Scleroderma is an incredibly rare condition. Developing new treatments is challenging due to small numbers of patients. Find out how SRUK and Alder Hey are tackling this!
Friday 17th September 2021
2021 Virtual Conference Round-Up
A series of talks took place throughout the day, covering areas of research funded by SRUK, advice on symptom management, and discussions about the future. This article offers a brief overview of each talk as a taster, and in the coming months they will be made available online.
Thursday 16th September 2021
Living with lung disease: Georgina's story
September is Pulmonary Fibrosis Awareness Month. Pulmonary fibrosis (PF) is also known as interstitial lung disease (ILD) and is the most common form of lung involvement in SSc. This can occur at any time, although early detection often leads to much better outcomes. This is Georgina’s story of living with lung disease, which has a dramatic impact upon her life.
Wednesday 1st September 2021
The OCTAVE Study: Scaling up our understanding of vaccine effectiveness in people living with autoimmune conditions
OCTAVE study reveals how effective COVID-19 vaccinations are in immunocompromised participants
Thursday 26th August 2021
Just in time! UK approves new COVID-19 treatment for immunocompromised individuals
As OCTAVE study sheds light on the reduced immune response in those with chronic illness, the new antibody treatment from Regeneron and Roche could be of great benefit for those who are immunosuppressed or immunocompromised.
Friday 6th August 2021
Utilizing Ultrasound
Dr Victoria Flower was awarded funding by SRUK to research non-invasive methods of skin assessment in scleroderma. Last month, her work was published in The Journal of Rheumatology, discussing the potential use of High Frequency Ultrasound as a more objective and detailed measure of skin involvement in scleroderma.
Tuesday 3rd August 2021
Johnny Howley's 3 Peaks Challenge
A father from Greater Manchester, whose six-year-old daughter has the rare autoimmune disease scleroderma, has raised more than £7,000 for SRUK to help fund research into the condition