Wednesday 11th October 2023
New hope for Raynaud’s treatments after researchers confirm genetic causes
Researchers have, for the first time, identified two genes that can increase the risk of developing Raynaud’s.
Tuesday 3rd October 2023
The British Society for Rheumatology Annual Conference 2023: Research Round-Up
Earlier in the year we attended the British Society for Rheumatology Annual Conference, joining over 2,300 attendees which included leading doctors, nurses, and healthcare professionals working in the field. The conference was a fantastic opportunity to raise awareness of Scleroderma and Raynaud’s, and we got the chance to hear about some of the latest research aiming to improve our understanding of the conditions and open new avenues of care. Read on to learn more about some of the exciting projects we heard about at the conference!
Friday 15th September 2023
The Perfect Patient Information Journey in Scleroderma
Scleroderma can be complex and unpredictable, affecting people in many different ways. But what might the scleroderma journey look like? And why is it so important to find out? Working with the Patient information Forum, SRUK has identified this journey and created some new information resources for everyone affected by scleroderma. These materials are designed to reassure people they are not alone, and to help them access reliable information.
Wednesday 30th August 2023
MELODY: Study finds immunosuppressed people make antibodies after COVID-19 vaccination
People with weakened immune systems, including those with Scleroderma, are at increased risk of developing a severe infection after being exposed to Covid-19. Vaccinations and booster doses have been offered to immunosuppressed patients since the roll-out of the NHS vaccination programme in 2020. But how well do they work in people who have weakened immune systems? Read on to hear the exciting findings from the MELODY study!
Wednesday 19th July 2023
The OASIS project: SRUK-funded research builds evidence for new methods of skin assessment in Scleroderma
A recently completed SRUK-funded research project, led by Dr Peter Worsley at the University of Southampton, has built evidence for the use of non-invasive tools which can accurately measure the health of the skin in Scleroderma. The findings of the project have the potential to drive forward the use of new, non-invasive skin assessment methods, using tools employed in the assessment of other conditions that affect the skin, which could be an important step towards improving the diagnosis and monitoring of the condition.
Thursday 22nd June 2023
SRUK reveals results of survey of Rheumatologists
SRUK Calls for greater investment in rare rheumatic disease training as survey finds Rheumatologists can struggle due to lack of education and resource
Tuesday 30th May 2023
The CRISTAL Index: Improving the assessment of new scleroderma treatments in clinical trials
One of SRUK’s central objectives is to advance research that will lead to the development of new and effective treatments. But how do we make sure that new therapies will be effective? Recently, SRUK has funded a US-based research project that will help to ensure that potential treatments are effective in ways that are relevant to both patients and clinicians. This could be vital in giving people living with the condition access to treatments that work for them.
Wednesday 10th May 2023
Imperial College London's 'Science in Medicine School Teams Prize 2023' now open for entries!
The Scleroderma and Raynaud’s UK sponsored 'Science in Medicine School Teams Prize 2023' contest is now open for entries. The contest aims to engage sixth form school students with science in medicine, and challenges students to prepare an ePoster with a novel vision on how to promote the health and well-being of individuals with Scleroderma and/or Raynaud’s. If you're interested in entering, or know someone in sixth form who might be, read on to find out more!
Tuesday 28th March 2023
British Society of Rheumatology announce plans for new revision of Systemic Sclerosis Guideline
Last week, the scope for a new revision of the British Society for Rheumatology’s systemic sclerosis (SSc) guideline was published in the ‘Rheumatology: Advances in Practice’ journal. SRUK are excited to be playing a role in this timely and relevant project. Read on to find out more about the BSR guideline and how it’s revision could benefit you!
Thursday 16th March 2023
SRUK's Response To The 2023 Spring Budget
SRUK says the government plans for energy bills offer "short-term respite" - with longer-term solutions still needed.