Managing Your Wellbeing
Living with this condition is likely to mean that you become tired more easily, or you may become breathless when walking short distances or climbing the stairs. Pacing yourself and recognising when you need to slow down will help you to manage your symptoms and keep on living life to the fullest.
Whenever you can, try to save vital energy for the things that are important to you. If you enjoy meeting friends or a doing a particular activity, accepting help when available and planning ahead to conserve energy will help you to continue doing the things you enjoy.
It is important to take steps to stay as healthy as possible, and optimising your lifestyle may even help slow down the progression of your condition. Taking regular exercise within your comfort zone will not make your condition worse, and it is important to remain as active as you can; for your emotional wellbeing as well as for your physical health. Even a very short walk can make a real difference. Try not to overdo it, as it is important not to become tired from over-exertion and sometimes a small amount every day is enough.
More information and finding support
SRUK are here to support you and we offer a number of ways to access information and resources, find support and connect with others who may be in a similar situation. Please give us a call on 020 3893 5998 and we will be very happy to help you.
Our Facebook, Twitter, Instagram and Youtube pages are designed to enable you to interact with others, discuss different issues and share advice. You can also help us to raise awareness of Scleroderma and Raynaud's by sharing web pages using the share buttons.
Join our online community
You can also visit our online community hosted on the Health Unlocked website. This is a friendly space where you can chat with other people who are affected by scleroderma, exchange advice and information and share support.
Ask us a question
If you have a question and you cannot find the answer, please contact us at firstname.lastname@example.org and we can forward it to a specialist on your behalf.