Watch and Share
We have partnered with FESCA to produce this animation to raise awareness of scleroderma and the symptoms to look out for. You can help us share the message and raise awareness to help others.
Celebrate World Scleroderma Day with us on June 29th
"I am my passion not my disease"
We are proud to be part of FESCA (Federation of European Scleroderma Associations); an umbrella group of scleroderma patient support-and-advocacy organisations working to increase awareness, and advocate for equitable treatments for people with scleroderma throughout Europe.
The theme of FESCAs awareness campaign of 2021 is recognising that the person with Scleroderma is so much more than the disease.
Their slogan “I AM MY PASSION NOT MY DISEASE! Scleroderma and COVID 19 will not take my smile!” demonstrates that whilst it is vital that we increase knowledge about the condition, it is also important that we treat and understand the person not just the disease. Their aim is to value as much as possible what each patient does in their life and throughout the month they will be sharing stories of what people and showing what makes them smile, fight and overcome the disease.
You can download and share this poster to help us promote World Scleroderma Day
The history
In February 2010 the 1ST SYSTEMIC SCLEROSIS WORLD CONGRESS was held in Florence, Italy, with participants from all over the world attending. At the world congress it was agreed that June 29th would be celebrated as World Scleroderma Day all over the world. In just 2 short years, World Scleroderma Day was celebrated in countries all over the globe, from Europe to Australia, Canada, Brazil and India. Find out more
Why the 29th June?
The gifted Swiss artist Paul Klee made painting his life's work. His paintings were strongly influenced by his condition, systemic scleroderma. He died on 29th June 1940 and every year on this day we all join together to celebrate his determination and resilience and that of the scleroderma community across the world.