Personal stories - scleroderma
We are incredibly grateful to everyone who has shared their personal stories of life with scleroderma. As well as continuing to raise awareness, sharing experiences of the various aspects of living with this little-known and often challenging condition is an important information resource, that is available whenever someone is looking for some support.
Please follow the links below to read the real-life accounts of people living with scleroderma. Their stories share their experiences of common symptoms, getting diagnosed and the many ways that this can affect their day-to-day lives; as well as some of the more difficult aspects of living with what can be a painful and debilitating condition.
Could you share your story with us? Scleroderma affects different people in different ways, and no two stories are ever the same. Whatever your experiences, we would love to hear from you. Please get in touch with us if you would like some more information, and we will be very happy to help you.
Connor's story of scleroderma and Raynaud's
Connor shares his story of managing his condition while raising a child.
Michael's story of systemic sclerosis
Michael Corbett shares with us how his multiple conditions have completely changed his life
Lynn's scleroderma story
Read Lynn's story of systemic sclerosis with her presentation from our Annual Conference
Jay talks about living with scleroderma to BBC Berkshire
Alison and Eliza’s story
Alison tells the story of her daughter Eliza’s morphea
Diane's scleroderma story | World Scleroderma Day
Alex's scleroderma story
Read Alex' story and hear her talk about make-up for scleroderma and applying to the skin in tutorials