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Meet #TeamSRUK for the London Landmarks Half Marathon 2019

This is the first year SRUK are taking part of the London Landmarks Half Marathon and here are our 10 runners

Meet the Scientist - Dr Elizabeth Renzoni

Dr. Elizabeth Renzoni has been working as a consultant respiratory physician at Royal Brompton Hospital in the ILD Unit and an honorary senior lecturer at Imperial College London since 2006. We spoke to her about her career in research.

Meet the Scientist - Professor Rizgar Mageed

Here is a little insight into the lives of some of the researchers we fund, what keeps them in the laboratory and the future of research.

A novel study to detect early scleroderma symptoms has been funded by SRUK

SRUK and Dr Francesco del Galdo worked together to raise awareness of Raynaud’s Phenomenon and diagnose people in Leeds with Raynaud's. He is now leading a study that will have huge potential to ‘predict’ who will develop scleroderma and therefore will enable earlier treatment that may be able to prevent, or even cure, the condition.

SRUK launches online Raynaud’s test to aid in diagnosis

In a bid to raise awareness of Raynaud’s phenomenon (RP) and to encourage individuals to be actively involved in their own healthcare, SRUK led an initiative to develop a ‘Raynaud’s test’ on their website for the online audience.

SRUK commits to funding a pre-clinical study to evaluate a novel and innovative therapy to treat fibrosis

Skin fibrosis can be a severe and life limiting complication of scleroderma, with a dramatic impact on quality of life. It can be progressive and painful, leading to permanent ulcers and restriction of movement. Being able to limit the progression of skin fibrosis, and ultimately, reverse the effects are a key priority for SRUK and our community.

Detecting heart abnormalities earlier: SRUK funding has potential to save lives

SRUK have made a significant contribution in providing funding for this two-year pilot study, which is well underway. Initial results are promising, and the success of the study means that the implantable loop recorder can then be examined through a wider clinical study.

Examining blood flow in Scleroderma and Raynaud’s: A research study working with patients

Dr. Victoria Flower, based in Bath, is working on a new research project, fully entitled, ‘The role of Hypoxia Inducible Factor and Vascular Endothelial Growth Factor in microvascular dysfunction and fibrosis in Systemic sclerosis’, to examine factors that may be affecting blood flow in people with Scleroderma and Raynaud’s.

SRUK win consultation with top health communication agency

Scleroderma & Raynaud’s UK (SRUK) has been awarded a consultation with The Difference Collective to enhance current communications. SRUK will get the chance to pick the brains of up to 10 of the Collectives top healthcare comms experts during a free one-hour brainstorming session.

World Scleroderma Day

Find out what's happening for World Scleroderma Day on 29th June.

A quick look at 7 medications to treat Pulmonary Hypertension

Pulmonary hypertension is raised blood pressure within the pulmonary arteries, which are the blood vessels that supply the lungs.

Statement: Tragic death of Holly Monk