Search Results

Have you given your risk of flu a second thought?

Many people are entitled to a free flu jab this year, and you may have received a letter about this. But why is this important and what are the benefits? And is there anyone who should not have the flu vaccine? We have all the answers you need.

Joint statement on rise in COVID-19 cases in the UK

Together with our partner organisations of RAIRDA (The Rare Autoimmune Rheumatic Diseases Alliance), we have released a joint statement in response to the recent rise in coronavirus cases. This is regarding the effect of the pandemic on the ongoing, continuing care of people with rare, autoimmune conditions, including scleroderma; as well as the issue of shielding.

Chronic pain – how to break the cycle and take control

With around 28 million adults now living with chronic pain in the UK, it has become something of a silent epidemic. There are however a number of ways to help reduce its impact upon your life.

Get ready for Raynaud’s Awareness Month - February 2020

Our 2019 Raynaud’s Awareness Month in February was a great success, with over 25,000 people taking our online Raynaud’s test. We want to do even better in 2020 and we need your help.

Can lung fibrosis be stopped?

Close to 70% of people living with systemic sclerosis develop interstitial lung disease, which often takes the form of pulmonary fibrosis. Recent research into protein inhibitors may lead to new therapeutic agents to treat pulmonary fibrosis.

Your employment support allowance stories

Many of our community will understand the difficulties that come with trying to secure disability benefits. As scleroderma is still a little known illness, it can take some hard work to secure the benefits you are entitled to. To help you figure out how to approach the process, we’ve asked members of our community to share their experiences.

The future of systemic sclerosis classification

A recent review published in Nature Rheumatology focused on research into the classification of scleroderma, which suggests that the current classification does not capture the heterogeneity of the condition.

Meet Our Fundraisers Shining A Spotlight On The Importance Of Early Detection

As a charity, our community of fundraisers are crucial to the work that we do. We are shining a spotlight on two fundraisers who are particularly passionate about the importance of early detection.

Why Early Detection of Scleroderma Matters

For patients with scleroderma, early detection is crucial. It can make a world of difference when fighting a disease as unpredictable as this one. In order to highlight the importance of early detection, we have collated anecdotes from our community members about their experiences with early detection, or lack thereof.

Innovations in the assessment of Raynaud’s Phenomenon

Despite the similarity of initial symptoms in primary Raynaud’s phenomenon (PRP) and secondary Raynaud’s phenomenon (SRP), the long-term implications of SRP mean that it is critical for there to be more effective assessments that can accurately specify which of the two a person may have.

Hand-arm vibration syndrome: the importance of protecting yourself in the workplace

Prolonged exposure to hand-transmitted vibration (HTV) can result in hand-arm vibration syndrome (HAVS). When associated with secondary Raynaud’s, this is called vibration white finger, where there is damage to nerves, blood vessels and joints in the hand.

Memories of Love

At the end of 2018 at SRUK we paused to read the many reasons people had given for supporting the charity during the year. We were humbled to see that more than half of everyone that donates to us is honouring the memory of a loved one or friend.