Thursday 6th September 2018
Initially diagnosed with fibromyalgia, Lauren had actually developed a very aggressive form of scleroderma. Her condition worsened and after a harrowing 3 weeks in intensive care, she died of acute renal crisis and accelerated hypertension. Her father Philip tells her story.
Tuesday 28th August 2018
Funding important research into medical conditions is a crucial way in which medical research charities improve people’s lives. When a condition is rare like scleroderma, then that research becomes even more vital.
Friday 24th August 2018
Slightly older ears may remember the days of ‘CREST’, the now outdated term for Scleroderma. But what did ‘CREST’ mean? Why was it used? And why was the term abandoned in mainstream medical practice?
Monday 20th August 2018
It’s been well established that women are more likely to be affected by Raynaud’s phenomenon than men but why? Let's look into the reasons behind this.
Friday 17th August 2018
SRUK will be working with Microsoft to develop wearable technology to further our research into the conditions.
Monday 23rd July 2018
#SclerodermaChat covered every aspect of the disease - from medical research and treatments to the experience of patients and carers.
Thursday 12th July 2018
Jo Barry walked 100 miles to raise vital funds and awareness for SRUK.
Monday 18th June 2018
Find out the impact of #KnowScleroderma for 2018
Thursday 7th June 2018
Recently we did some research that showed; millions of people across the UK could be living with a condition they know little or nothing about. It's time that we got to know Raynaud's.
Wednesday 6th June 2018
RAIRDA has published a report looking at the shared experiences of people living with rare autoimmune rheumatic diseases, the impact of these conditions, and their unmet needs in accessing timely and effective healthcare.
