Friday 2nd October 2020
Together with our partner organisations of RAIRDA (The Rare Autoimmune Rheumatic Diseases Alliance), we have released a joint statement in response to the recent rise in coronavirus cases. This is regarding the effect of the pandemic on the ongoing, continuing care of people with rare, autoimmune conditions, including scleroderma; as well as the issue of shielding.
Wednesday 30th October 2019
The theme of Dr Voon Ong’s talk at SRUK’s Cambridge Conference in July was clinical trials in the field of emerging therapies, providing an overview of the latest news from recently completed clinical studies and of ongoing studies that show significant promise.
Friday 25th October 2019
Close to 70% of people living with systemic sclerosis develop interstitial lung disease, which often takes the form of pulmonary fibrosis. Recent research into protein inhibitors may lead to new therapeutic agents to treat pulmonary fibrosis.
Tuesday 8th October 2019
Hairdresser Maxine Jackson shares in this piece how she remains motivated to focus on her passions whilst overcoming the day-to-day challenges of scleroderma and the common misconceptions.
Friday 4th October 2019
Physiotherapy relies on a variety of techniques to help restore movement and function when someone is affected by injury, illness or disability. Physiotherapy exercises are rapidly becoming a key management approach that can be taken to limit tightening of skin, which is characteristic to all forms of scleroderma.
Tuesday 1st October 2019
Proud mum Lizzi Hooks, 38, has lived with Raynaud’s phenomenon for most of her life, following self-diagnosis at the age of 14. Lizzi has told us her story to share how she manages daily tasks when her fingers fail her.
Tuesday 30th October 2018
Fibrosis is often the fundamental reason of morbidity and mortality in systemic scleroderma, however there is no effective therapy to prevent this process. A new study has identified a protein that may trigger fibrosis.
Friday 26th October 2018
In a bid to raise awareness of Raynaud’s phenomenon (RP) and to encourage individuals to be actively involved in their own healthcare, SRUK led an initiative to develop a ‘Raynaud’s test’ on their website for the online audience.
Monday 22nd October 2018
Skin fibrosis can be a severe and life limiting complication of scleroderma, with a dramatic impact on quality of life. It can be progressive and painful, leading to permanent ulcers and restriction of movement. Being able to limit the progression of skin fibrosis, and ultimately, reverse the effects are a key priority for SRUK and our community.
Wednesday 17th October 2018
A study from Japan has devised a test which researchers claim could prove whether a patient has primary or secondary Raynaud’s.
