Thursday 24th June 2021

Annelise's scleroderma story

"A diagnosis, no matter what diagnosis, can be bad news but also good news. For most of us, the diagnosis is a relief. Now we can team up with others just like us, and the best teams are via the patient organizations. We can start a treatment; we are ready to fight back."

Read Article

Friday 11th June 2021

Walk for SRUK

People across the UK are being invited to lace up their trainers and get walking this summer in aid of people living with a chronic, life-limiting autoimmune condition called scleroderma

Read Article

Thursday 10th June 2021

SRUK joins call for employers to support people who may have less protection from vaccines

A coalition of charities, including SRUK has written an open letter to employers, calling for them to put protective measures in place for staff who may have reduced protection from the COVID-19 vaccine.

Read Article

Thursday 20th May 2021

Celebrating World Clinical Trials Day!

20 May 2021 is World Clinical Trials Day to mark the anniversary of the first-ever trial that was conducted in 1747. Today, clinical trials are vital in determining the safety and efficacy of new treatments all over the world. But what happens in a clinical trial, and could you take part?

Read Article

Friday 14th May 2021

Your Raynaud’s and You – Insights from SRUK’s work on the Raynaud’s App

Can you imagine a world where we could have a greater understanding of Raynaud’s? Have more information on what triggers an attack? Understand how in some cases Raynaud’s combined with other symptoms may be an early predictor of scleroderma? The Raynaud’s ResearchApp, an SRUK-led partnership with app development company Healthbit and data company D4T4, intends to do just this!

Read Article

Friday 7th May 2021

The Raynaud’s App: the story so far

SRUK is pioneering ‘The Raynaud’s ResearchApp,’ that aims to help identify Raynaud’s patients at risk of developing scleroderma, with a view to achieving earlier diagnosis and improved outcomes. The technology also enables users to record their experiences of Raynaud’s symptoms and learn more about potential triggers. The App has recently been piloted in a clinical trial.

Read Article

Friday 23rd April 2021

Gut feelings: how what you eat could be affecting your health - and what to do about it

How does our everyday diet influence how we feel, and could a few simple changes really make a difference?

Read Article

Friday 16th April 2021

A Design for Life: is scleroderma in the genes?

What is the link between our genetic code and developing scleroderma? Researchers from Spain have recently studied genetic alterations and established a connection with the pathways that dictate the clinical features of scleroderma. The study is significant because increasing our understanding of the genetic pathway could be a faster route towards identifying effective new therapies for this complex condition.

Read Article

Thursday 1st April 2021

Open Research - revolutionising the publishing process for SRUK research

SRUK is working with our partners at the Association of Medical Research Charities via their new Open Research Platform, to revolutionise the publishing process for our researchers. This will enable SRUK-funded research groups to publish their work in a streamlined and cost-effective way, with the ultimate goal of translating new knowledge into effective treatments for people living with scleroderma.

Read Article

Friday 19th March 2021

What's the outcome? Measuring the effectiveness of new treatments in clinical trials

Clinical trials are the only way to ensure that new treatments are effective. But how exactly does the process work? FInd out why 'outcome measures’ and ‘endpoints’ are crucial, and how SRUK funding is playing a key role in improving the measures used in treatments for scleroderma.

Read Article