Thursday 22nd June 2023
SRUK reveals results of survey of Rheumatologists
SRUK Calls for greater investment in rare rheumatic disease training as survey finds Rheumatologists can struggle due to lack of education and resource
Tuesday 30th May 2023
The CRISTAL Index: Improving the assessment of new scleroderma treatments in clinical trials
One of SRUK’s central objectives is to advance research that will lead to the development of new and effective treatments. But how do we make sure that new therapies will be effective? Recently, SRUK has funded a US-based research project that will help to ensure that potential treatments are effective in ways that are relevant to both patients and clinicians. This could be vital in giving people living with the condition access to treatments that work for them.
Wednesday 10th May 2023
Imperial College London's 'Science in Medicine School Teams Prize 2023' now open for entries!
The Scleroderma and Raynaud’s UK sponsored 'Science in Medicine School Teams Prize 2023' contest is now open for entries. The contest aims to engage sixth form school students with science in medicine, and challenges students to prepare an ePoster with a novel vision on how to promote the health and well-being of individuals with Scleroderma and/or Raynaud’s. If you're interested in entering, or know someone in sixth form who might be, read on to find out more!
Tuesday 28th March 2023
British Society of Rheumatology announce plans for new revision of Systemic Sclerosis Guideline
Last week, the scope for a new revision of the British Society for Rheumatology’s systemic sclerosis (SSc) guideline was published in the ‘Rheumatology: Advances in Practice’ journal. SRUK are excited to be playing a role in this timely and relevant project. Read on to find out more about the BSR guideline and how it’s revision could benefit you!
Thursday 16th March 2023
SRUK's Response To The 2023 Spring Budget
SRUK says the government plans for energy bills offer "short-term respite" - with longer-term solutions still needed.
Friday 10th March 2023
SRUK Research Sheds Light on the Effect of Calcinosis on Patients
Calcinosis is often a debilitating and painful symptom of systemic sclerosis. Last winter, SRUK led a piece of research in partnership with Professor Ariane Herrick, which aimed to build our understanding of the effect of calcinosis on people with scleroderma. We are thrilled to announce that the findings, which our community contributed to, have been published in the journal ‘Rheumatology.’ Read on to find out more about what we learned!
Wednesday 8th March 2023
Shadow Business Minister Seema Malhotra MP Backs SRUK's Calls for Energy Help
Ahead of the Chancellor’s Spring Budget and statement on 15th March we are delighted that Shadow Business Minister and MP for Feltham and Heston, Seema Malhotra, has joined our campaign to keep heating affordable for those living with Raynaud’s. SRUK is calling for government action after finding that many people with Raynaud’s, who typically rely on their heating to prevent painful attacks, are struggling with the high cost of energy.
Wednesday 8th February 2023
STAR turns 1! Here’s what we learned from the Symptom Tracking App for Raynaud’s in 2022
January 2023 marked the 1st Anniversary of the SRUK STAR App. The data contained within the app helps facilitate research into Raynaud’s, allowing us to learn more about the condition and how it affects our community. Read on to find out more about the STAR App and what your data has shown us so far!
Wednesday 1st February 2023
Raynaud's Awareness Month 2023
SRUK calls on public to write to their MP to help keep heating affordable for people with Raynaud's
Monday 5th December 2022
The MINIMISE-Pilot study: seeking to minimise disease progression in limited scleroderma
Do you have limited systemic sclerosis and live in the UK? Read on to find out how you could take part in a clinical trial of a treatment for the condition.