Thursday 28th May 2020

Growing up with juvenile scleroderma

What is it really like to grow up with scleroderma? We look at the various ways that this condition can affect our children, both physically and emotionally, as they navigate the path to adulthood.

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Thursday 28th May 2020

Chronic pain – how to break the cycle and take control

With around 28 million adults now living with chronic pain in the UK, it has become something of a silent epidemic. There are however a number of ways to help reduce its impact upon your life.

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Tuesday 28th April 2020

Approval of nintedanib for systemic sclerosis-associated interstitial lung disease

Nintedanib, a drug that slows the rate of lung fibrosis, has been approved as a treatment for individuals with systemic sclerosis-associated interstitial lung disease, the first option to have been made available.

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Friday 17th April 2020

Identifying barriers to exercise

Remaining physically active is important for everyone, but sometimes this is very challenging for the SRUK community. A study set up by the Scleroderma Patient Intervention Network sought to understand what the major barriers and facilitators to exercise are.

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Thursday 5th March 2020

Novel Coronavirus (COVID-19) advice for our community

Advice from Public Health England on COVID-19 to help you understand the implications if you have scleroderma and Raynaud's.

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Friday 14th February 2020

The real reason for the gender heating wars

A survey released today for Raynaud’s Awareness Month shows that 61% of women surveyed who admit to secretly adjusting the heating in their home, turn it up or on, while 56% of men who do the same acknowledge turning it down or off on the sly.

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Monday 10th February 2020

Your Questions Answered: Is Raynaud’s syndrome hereditary and more

Despite Raynaud’s syndrome being a relatively common condition, with up to 10 million people in the UK diagnosed, several questions remain about the nature of the disease. We've addressed some of the most frequently asked ones here.

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Tuesday 4th February 2020

Raynaud’s: Managing symptoms and avoiding triggers

With winter now upon us – a bad season for Raynaud’s patients – we asked members of our community for tips to avoid triggers and manage their symptoms.

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Wednesday 22nd January 2020

The latest research into Raynaud's syndrome

Research into many aspects of Raynaud’s syndrome has recently been conducted, but it is crucial that more research is focused on areas such as treatment, diagnoses and causes.

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Friday 17th January 2020

The Role of the Physiotherapist in the Management Systemic Sclerosis

At SRUK’s Regional Conference in Glasgow, physiotherapist Will Gregory presented the latest research within this field as well as his recommendations for helpful exercises that could be performed.

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