Friday 10th March 2023

SRUK Research Sheds Light on the Effect of Calcinosis on Patients

Calcinosis is often a debilitating and painful symptom of systemic sclerosis. Last winter, SRUK led a piece of research in partnership with Professor Ariane Herrick, which aimed to build our understanding of the effect of calcinosis on people with scleroderma. We are thrilled to announce that the findings, which our community contributed to, have been published in the journal ‘Rheumatology.’ Read on to find out more about what we learned!

Read Article

Wednesday 8th March 2023

Shadow Business Minister Seema Malhotra MP Backs SRUK's Calls for Energy Help

Ahead of the Chancellor’s Spring Budget and statement on 15th March we are delighted that Shadow Business Minister and MP for Feltham and Heston, Seema Malhotra, has joined our campaign to keep heating affordable for those living with Raynaud’s. SRUK is calling for government action after finding that many people with Raynaud’s, who typically rely on their heating to prevent painful attacks, are struggling with the high cost of energy.

Read Article

Wednesday 8th February 2023

STAR turns 1! Here’s what we learned from the Symptom Tracking App for Raynaud’s in 2022

January 2023 marked the 1st Anniversary of the SRUK STAR App. The data contained within the app helps facilitate research into Raynaud’s, allowing us to learn more about the condition and how it affects our community. Read on to find out more about the STAR App and what your data has shown us so far!

Read Article

Wednesday 1st February 2023

Raynaud's Awareness Month 2023

SRUK calls on public to write to their MP to help keep heating affordable for people with Raynaud's

Read Article

Monday 5th December 2022

The MINIMISE-Pilot study: seeking to minimise disease progression in limited scleroderma

Do you have limited systemic sclerosis and live in the UK? Read on to find out how you could take part in a clinical trial of a treatment for the condition.

Read Article

Tuesday 29th November 2022

New study could help find a treatment for scleroderma-related fibrosis

Do you have diffuse systemic sclerosis and live in the UK? Read on to find out how you could take part in a new study which could inform a clinical trial of a new treatment!

Read Article

Monday 21st November 2022

Treating Fibrosis in Scleroderma: SRUK-funded study lays groundwork for potential new treatment for scleroderma-related skin fibrosis

A recently completed study funded by SRUK in 2018, led by Professor Richard Stratton at the Royal Free Hospital, has laid the groundwork for a potential new treatment for scleroderma-related skin fibrosis, which could enable effective and painless treatment of fibrosis in people living with scleroderma.

Read Article

Thursday 17th November 2022

PEOPLE WITH RAYNAUD’S ONCE AGAIN IGNORED BY GOVERNMENT, SAYS SRUK

Scleroderma and Raynaud’s UK (SRUK) has expressed its disappointment that people with Raynaud’s have been ignored once again by the government.

Read Article

Wednesday 16th November 2022

Joy's Story

“I’m terrified of the weather getting colder as anything below 20 degrees in the house triggers a Raynaud’s attack and I feel very unwell with it.” Joy shares her fears of painful Raynaud’s attacks this winter

Read Article

Tuesday 15th November 2022

Helen Lewis's Story

“My Raynaud’s has definitely gotten worse this year. I used to have an attack a couple of times a week, particularly if I was outside in the cold, but now it happens every day, even in my own house.”

Read Article