Friday 11th February 2022

MELODY - Vaccine Efficacy in Immunocompromised People

A national trial is recruiting people with scleroderma to see how they have responded to their COVID-19 vaccinations. Have they produced antibodies?

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Friday 4th February 2022

Introducing STAR!

STAR is the newly upgraded app for tracking your Raynaud’ symptoms. The App was created to help you manage and record your attacks, all whilst contributing to valuable scientific research in just a few simple clicks.

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Monday 31st January 2022

Living with Raynaud's: Elizabeth's Story

Dorset mum says even supermarket trips can be painful: "I feel the cold a lot and struggle with things like going to the supermarket, especially visiting the cold aisles..."

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Friday 21st January 2022

What's New? Upcoming Research on Fibrosis

Welcome to 2022! The new year is a perfect opportunity to look forward and see what upcoming research is on the horizon.

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Friday 14th January 2022

Bring on the good days

Are you having a good day? How we spend our time can have a significant impact on how we feel. We talked to occupational therapist Lucy Reeve about some of the small changes that could make a big difference to our wellbeing and help make every day a little bit better.

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Friday 31st December 2021

Fast-forward to 2040: What does the future hold for Scleroderma?

As we come to the end of 2021, SRUK have been thinking about the new year, and the one after that… and the one after that. In just 12 months, we have seen huge change across the world, which got us thinking, what could things look like in 20 years?

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Thursday 16th December 2021

A Gut Feeling: The Microbiome and Scleroderma

At the 2021 SRUK Virtual Conference Dr Elizabeth Volkmann presented a very popular session on Understanding Gastrointestinal Involvement in Scleroderma – where she introduced the concept of how a person’s microbiome might influence their condition. This article takes a deeper dive into the world of the microbiome.

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Friday 10th December 2021

Increasing access to COVID-19 treatment for those most vulnerable

On the 8th December the UK government announced several measures to ensure those who are most at risk from COVID-19 are given access to new treatments within their community, and where possible, within their own home.

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Tuesday 30th November 2021

RAIRDA survey findings on access to third dose

RAIRDA and its member charities are calling for urgent government action to address concerns about the roll-out of third primary doses for the COVID-19 vaccine.

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Tuesday 30th November 2021

Omicron - The Latest COVID-19 Variant: Should I be Worried?

A new COVID-19 variant originating from South Africa is making headlines due to its large number of mutations and the risk they pose. Designated as a ‘variant of concern’ by WHO, how worried do we need to be about the Omicron variant, and what do you need to be aware of?

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