News

Wednesday 30th August 2023

MELODY: Study finds immunosuppressed people make antibodies after COVID-19 vaccination

People with weakened immune systems, including those with Scleroderma, are at increased risk of developing a severe infection after being exposed to Covid-19. Vaccinations and booster doses have been offered to immunosuppressed patients since the roll-out of the NHS vaccination programme in 2020. But how well do they work in people who have weakened immune systems? Read on to hear the exciting findings from the MELODY study!

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Wednesday 19th July 2023

The OASIS project: SRUK-funded research builds evidence for new methods of skin assessment in Scleroderma

A recently completed SRUK-funded research project, led by Dr Peter Worsley at the University of Southampton, has built evidence for the use of non-invasive tools which can accurately measure the health of the skin in Scleroderma. The findings of the project have the potential to drive forward the use of new, non-invasive skin assessment methods, using tools employed in the assessment of other conditions that affect the skin, which could be an important step towards improving the diagnosis and monitoring of the condition.

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Thursday 22nd June 2023

SRUK reveals results of survey of Rheumatologists

SRUK Calls for greater investment in rare rheumatic disease training as survey finds Rheumatologists can struggle due to lack of education and resource

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Tuesday 30th May 2023

The CRISTAL Index: Improving the assessment of new scleroderma treatments in clinical trials

One of SRUK’s central objectives is to advance research that will lead to the development of new and effective treatments. But how do we make sure that new therapies will be effective? Recently, SRUK has funded a US-based research project that will help to ensure that potential treatments are effective in ways that are relevant to both patients and clinicians. This could be vital in giving people living with the condition access to treatments that work for them.

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Wednesday 10th May 2023

Imperial College London's 'Science in Medicine School Teams Prize 2023' now open for entries!

The Scleroderma and Raynaud’s UK sponsored 'Science in Medicine School Teams Prize 2023' contest is now open for entries. The contest aims to engage sixth form school students with science in medicine, and challenges students to prepare an ePoster with a novel vision on how to promote the health and well-being of individuals with Scleroderma and/or Raynaud’s. If you're interested in entering, or know someone in sixth form who might be, read on to find out more!

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Tuesday 28th March 2023

British Society of Rheumatology announce plans for new revision of Systemic Sclerosis Guideline

Last week, the scope for a new revision of the British Society for Rheumatology’s systemic sclerosis (SSc) guideline was published in the ‘Rheumatology: Advances in Practice’ journal. SRUK are excited to be playing a role in this timely and relevant project. Read on to find out more about the BSR guideline and how it’s revision could benefit you!

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Thursday 16th March 2023

SRUK's Response To The 2023 Spring Budget

SRUK says the government plans for energy bills offer "short-term respite" - with longer-term solutions still needed.

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Friday 10th March 2023

SRUK Research Sheds Light on the Effect of Calcinosis on Patients

Calcinosis is often a debilitating and painful symptom of systemic sclerosis. Last winter, SRUK led a piece of research in partnership with Professor Ariane Herrick, which aimed to build our understanding of the effect of calcinosis on people with scleroderma. We are thrilled to announce that the findings, which our community contributed to, have been published in the journal ‘Rheumatology.’ Read on to find out more about what we learned!

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Wednesday 8th March 2023

Shadow Business Minister Seema Malhotra MP Backs SRUK's Calls for Energy Help

Ahead of the Chancellor’s Spring Budget and statement on 15th March we are delighted that Shadow Business Minister and MP for Feltham and Heston, Seema Malhotra, has joined our campaign to keep heating affordable for those living with Raynaud’s. SRUK is calling for government action after finding that many people with Raynaud’s, who typically rely on their heating to prevent painful attacks, are struggling with the high cost of energy.

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Wednesday 8th February 2023

STAR turns 1! Here’s what we learned from the Symptom Tracking App for Raynaud’s in 2022

January 2023 marked the 1st Anniversary of the SRUK STAR App. The data contained within the app helps facilitate research into Raynaud’s, allowing us to learn more about the condition and how it affects our community. Read on to find out more about the STAR App and what your data has shown us so far!

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