Thursday 12th December 2019

Get ready for Raynaud’s Awareness Month - February 2020

Our 2019 Raynaud’s Awareness Month in February was a great success, with over 25,000 people taking our online Raynaud’s test. We want to do even better in 2020 and we need your help.

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Monday 9th December 2019

Thank you for taking part in our patient survey

Back in May 2019, we asked you to take part in a survey to help us understand how we can better serve our community of people living with scleroderma and Raynaud’s. We'd like to thank over 1,000 of you for completing the survey.

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Wednesday 4th December 2019

How scleroderma and Raynaud’s impact quality of life

To give you a little insight into how scleroderma and Raynaud's can impact a person’s quality of life, we asked a few of our community members to share their experiences.

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Wednesday 27th November 2019

Nutrition and exercise for chronic conditions

Many things can impact the quality of a person’s life, especially if you are living with a long-term chronic condition like scleroderma or Raynaud’s phenomenon. There are many ways to help manage the conditions, including better nutrition and exercise.

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Thursday 21st November 2019

Early Detection: A history of funding from SRUK

SRUK has long recognised that detecting the conditions earlier is key to ensuring that people live longer and better lives, which is why we fund studies to improve our understanding of the early warning signs of the conditions.

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Tuesday 19th November 2019

Quality of Life: A history of funding from SRUK

Here, we highlight some examples of research projects that have been funded by SRUK in the past which focus on improving quality of life for patients.

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Tuesday 5th November 2019

Research into gut involvement in systemic sclerosis

Dr Tracey Frech, the director of the systemic sclerosis (SSc) clinic at the University of Utah, and Salt Lake Veterans Affair Medical Centre, focussed her talk at the Cambridge conference on gut involvement in systemic sclerosis and the importance of research in this subject area.

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Wednesday 30th October 2019

Latest news from clinical trials of scleroderma treatments

The theme of Dr Voon Ong’s talk at SRUK’s Cambridge Conference in July was clinical trials in the field of emerging therapies, providing an overview of the latest news from recently completed clinical studies and of ongoing studies that show significant promise.

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Friday 25th October 2019

Can lung fibrosis be stopped?

Close to 70% of people living with systemic sclerosis develop interstitial lung disease, which often takes the form of pulmonary fibrosis. Recent research into protein inhibitors may lead to new therapeutic agents to treat pulmonary fibrosis.

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Tuesday 8th October 2019

Maxine Jackson's story

Hairdresser Maxine Jackson shares in this piece how she remains motivated to focus on her passions whilst overcoming the day-to-day challenges of scleroderma and the common misconceptions.

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