Tuesday 6th August 2019

Recent findings from SRUK-funded study of wax-bath treatments for scleroderma published

The musculoskeletal features of systemic sclerosis (SSc) are a major cause of disability, causing limitations to movement and function. The study aim was to compare the effects of daily hand exercises with or without daily home wax bath hand treatment in patients with SSc.

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Friday 2nd August 2019

Why Early Detection of Scleroderma Matters

For patients with scleroderma, early detection is crucial. It can make a world of difference when fighting a disease as unpredictable as this one. In order to highlight the importance of early detection, we have collated anecdotes from our community members about their experiences with early detection, or lack thereof.

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Monday 8th July 2019

SRUK wins £1,000 Movement for Good award

SRUK has won a £1,000 boost as part of specialist insurer Ecclesiastical's Movement for Good awards, which is giving £1 million to charities this summer.

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Thursday 27th June 2019

The role of the lymphatic system in autoimmune disease

Given the role that the lymphatic system plays with the immune system, it has been speculated that lymphatic dysfunction may encourage the development of rheumatic autoimmune diseases, such as scleroderma, lupus and rheumatoid arthritis.

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Friday 21st June 2019

Predicting outcomes in fibrotic conditions

Fibrosis is one of the major physical changes that a person living with scleroderma can experience. Its effects are potentially extremely damaging and widespread in the body, it is critical that biomarkers are defined to predict if certain individuals are at risk of developing fibrosis.

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Tuesday 11th June 2019

Does epigenetics have a part to play in scleroderma?

A core pillar of SRUK’s 5-year research strategy is identifying causes behind the development of Raynaud’s and scleroderma. Here we've explored the current research into the potential epigenetic causes of autoimmune conditions like scleroderma.

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Thursday 6th June 2019

Innovations in the assessment of Raynaud’s Phenomenon

Despite the similarity of initial symptoms in primary Raynaud’s phenomenon (PRP) and secondary Raynaud’s phenomenon (SRP), the long-term implications of SRP mean that it is critical for there to be more effective assessments that can accurately specify which of the two a person may have.

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Tuesday 4th June 2019

Hand-arm vibration syndrome: the importance of protecting yourself in the workplace

Prolonged exposure to hand-transmitted vibration (HTV) can result in hand-arm vibration syndrome (HAVS). When associated with secondary Raynaud’s, this is called vibration white finger, where there is damage to nerves, blood vessels and joints in the hand.

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Friday 31st May 2019

New internal regulator of the immune system discovered in an SRUK-funded study

SRUK are thrilled to see the results of an investigation, undertaken by an international team of researchers and clinicians, where there has been the identification of a new internal regulator which helps to control the body’s immune response.

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Friday 24th May 2019

Boehringer Ingelheim publish new data on experimental ILD drug

Approximately 25% of people who live with systemic sclerosis (SSc) also develop significant pulmonary (lung) involvement within 3 years of diagnosis. Nintedanib could make a considerable difference to the lives of people with this rare and often life-threatening disease.

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