Friday 24th June 2022

Identifying Scleroderma Patients at Risk of Pulmonary Hypertension - US Study Provides Potential Biomarker for the Condition

A new US study has found that scleroderma patients who test positive for ‘anti-Th/To antibodies’ are at higher risk of developing pulmonary hypertension (PH) in comparison to other patients, which could enable the earlier detection and more effective management of one of scleroderma’s most serious complications.

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Friday 17th June 2022

Mum Whose Daughters Have Scleroderma Helps SRUK Produce Schools Guide

Both of Alison's daughters have scleroderma, and having experienced the lack of understanding around the condition, she set out to help SRUK create a guide to scleroderma for schools.

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Wednesday 8th June 2022

Innovative Medicines Fund: Accelerating treatments to the rare disease community

Yesterday saw the launch of the Innovative Medicines Fund (IMF) - a scheme which will give NHS patients living in England, including those with rare diseases like Scleroderma, the chance to have ‘early’ access to cutting-edge treatments offering them the best chances of a longer and healthier life.

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Thursday 26th May 2022

Getting a Grip on Scleroderma: Double Hand Transplant for Scleroderma Patient

A British man has become the first Scleroderma patient to receive a double hand transplant for the condition, giving him a new lease of life and prompting hope for many of those most severely affected by the condition.

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Tuesday 10th May 2022

The VEDOSS Project – Predicting the Progression of Raynaud’s to Systemic Sclerosis

New research suggests the ‘VEDOSS’ Criteria could be used to accurately predict which individuals living with Raynaud's are likely to progress to Systemic Sclerosis, prompting further hope regarding the early detection and treatment of the condition.

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Friday 22nd April 2022

Developing the Next Generation of Medicine

SRUK co-funds a MRC Clinical Research Training Fellowship to advance research into treatments for interstitial lung disease.

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Wednesday 20th April 2022

Grant Call: Quality of Life

Ongoing research towards developing new treatments and therapies has a cumulative effect in improving quality of life, but can the problem be addressed directly?

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Friday 25th March 2022

New treatment which prevents COVID-19 infection in immunocompromised adults approved in UK

On the 17th March 2022 the UK’s Medicine and Health products Regulation Agency (MHRA) approved a new drug, Evusheld, for the prevention of COVID-19 infection.

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Thursday 10th March 2022

New Research Project Funded: Stratified Medicines of the Future

Can you imagine a future where we will be able to eliminate trial and error in prescribing medications by predicting the best treatment for a person’s scleroderma before they even receive it! The winning proposal of the SRUK/ WSF Stratified Medicine of the Future Award aspires to make this a reality.

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Friday 25th February 2022

What's New? Upcoming Research on Raynaud's

Happy Raynaud's Awareness Month! In this week's article we take a closer look at some of the upcoming research focused on Raynaud's!

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