Wednesday 1st February 2023
Raynaud's Awareness Month 2023
SRUK calls on public to write to their MP to help keep heating affordable for people with Raynaud's
Monday 5th December 2022
The MINIMISE-Pilot study: seeking to minimise disease progression in limited scleroderma
Do you have limited systemic sclerosis and live in the UK? Read on to find out how you could take part in a clinical trial of a treatment for the condition.
Tuesday 29th November 2022
New study could help find a treatment for scleroderma-related fibrosis
Do you have diffuse systemic sclerosis and live in the UK? Read on to find out how you could take part in a new study which could inform a clinical trial of a new treatment!
Monday 21st November 2022
Treating Fibrosis in Scleroderma: SRUK-funded study lays groundwork for potential new treatment for scleroderma-related skin fibrosis
A recently completed study funded by SRUK in 2018, led by Professor Richard Stratton at the Royal Free Hospital, has laid the groundwork for a potential new treatment for scleroderma-related skin fibrosis, which could enable effective and painless treatment of fibrosis in people living with scleroderma.
Thursday 17th November 2022
PEOPLE WITH RAYNAUD’S ONCE AGAIN IGNORED BY GOVERNMENT, SAYS SRUK
Scleroderma and Raynaud’s UK (SRUK) has expressed its disappointment that people with Raynaud’s have been ignored once again by the government.
Wednesday 16th November 2022
Joy's Story
“I’m terrified of the weather getting colder as anything below 20 degrees in the house triggers a Raynaud’s attack and I feel very unwell with it.” Joy shares her fears of painful Raynaud’s attacks this winter
Tuesday 15th November 2022
Helen Lewis's Story
“My Raynaud’s has definitely gotten worse this year. I used to have an attack a couple of times a week, particularly if I was outside in the cold, but now it happens every day, even in my own house.”
Monday 7th November 2022
Government Must Act on Cost of Living to Protect Health of Millions With Raynaud's, Says SRUK
SRUK Survey highlights the devastating impact of the cost-of-living crisis and high energy bills for people with Raynaud's.
Friday 4th November 2022
RAIRDA Report - Resetting the Balance
The Rare Autoimmune Rheumatic Disease Alliance (RAIRDA) which SRUK is a member of, has released a report highlighting ‘alarming disparities in the quality of care and treatment’ received by people living with rare autoimmune rheumatic diseases (RAIRDs).
Monday 10th October 2022
Winter Vaccinations: Get Your COVID-19 Boosters & Flu Vaccines Now!
To help protect those at risk from COVID-19 & flu, the NHS is currently offering flu vaccines and an autumn COVID booster to those with weakened immune systems, the over 50s, and household members of those who are deemed clinically vulnerable. These vaccines can reduce your chances of catching the viruses and getting seriously ill as a result of them. It's as important as ever to make sure that you, and those in close contact to you, are protected from infection before winter rolls around, so read more about how to get both vaccines here!