Tuesday 29th November 2022
Do you have diffuse systemic sclerosis and live in the UK? Read on to find out how you could take part in a new study which could inform a clinical trial of a new treatment!
Monday 21st November 2022
A recently completed study funded by SRUK in 2018, led by Professor Richard Stratton at the Royal Free Hospital, has laid the groundwork for a potential new treatment for scleroderma-related skin fibrosis, which could enable effective and painless treatment of fibrosis in people living with scleroderma.
Thursday 17th November 2022
Scleroderma and Raynaud’s UK (SRUK) has expressed its disappointment that people with Raynaud’s have been ignored once again by the government.
Wednesday 16th November 2022
“I’m terrified of the weather getting colder as anything below 20 degrees in the house triggers a Raynaud’s attack and I feel very unwell with it.” Joy shares her fears of painful Raynaud’s attacks this winter
Tuesday 15th November 2022
“My Raynaud’s has definitely gotten worse this year. I used to have an attack a couple of times a week, particularly if I was outside in the cold, but now it happens every day, even in my own house.”
Monday 7th November 2022
SRUK Survey highlights the devastating impact of the cost-of-living crisis and high energy bills for people with Raynaud's.
Friday 4th November 2022
The Rare Autoimmune Rheumatic Disease Alliance (RAIRDA) which SRUK is a member of, has released a report highlighting ‘alarming disparities in the quality of care and treatment’ received by people living with rare autoimmune rheumatic diseases (RAIRDs).
Monday 10th October 2022
To help protect those at risk from COVID-19 & flu, the NHS is currently offering flu vaccines and an autumn COVID booster to those with weakened immune systems, the over 50s, and household members of those who are deemed clinically vulnerable. These vaccines can reduce your chances of catching the viruses and getting seriously ill as a result of them. It's as important as ever to make sure that you, and those in close contact to you, are protected from infection before winter rolls around, so read more about how to get both vaccines here!
Wednesday 5th October 2022
Having scleroderma often means living with uncertainty around how the disease will progress over time, and the effect that this could have on future quality of life. New research funded by SRUK aims to help address the impact of this ‘prognostic uncertainty’, by using indicators that will predict disease progression and ultimately improve treatment options.
Tuesday 20th September 2022
CAR T cells are an exciting and emerging therapy which have been used to treat certain cancers, giving hope to those for whom no other treatments have worked. A recent study carried out in Germany which studied patients with lupus suggests that this therapy could be of use in treating a host of autoimmune conditions including scleroderma.
