Monday 23rd July 2018
Online chat with scleroderma experts on Twitter #SclerodermaChat
#SclerodermaChat covered every aspect of the disease - from medical research and treatments to the experience of patients and carers.
Wednesday 6th June 2018
New RAIRDA Report: Reduce, Improve, Empower
RAIRDA has published a report looking at the shared experiences of people living with rare autoimmune rheumatic diseases, the impact of these conditions, and their unmet needs in accessing timely and effective healthcare.
Friday 1st June 2018
Half of people living with scleroderma in the UK aren’t getting the medical support they need
Find out about the #KnowScleroderma campaign and the symptoms of scleroderma
Thursday 17th May 2018
WeAreSRUK at Royal Free Scleroderma Family Day
We're meeting leading medical professionals to discuss the latest in scleroderma
Saturday 10th February 2018
Statement: Tragic death of Holly Monk
Wednesday 7th February 2018
UK Strategy for Rare Diseases (Update)
Tuesday 6th February 2018
Rare Disease Day 2018
Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives.
Friday 2nd February 2018
Raynaud's Awareness Month 2018 coverage
Read about the impact of Raynaud's Awareness Month 2018 coverage
Monday 15th January 2018
Trust me I'm a Doctor
BBC 2' Trust Me I'm a Doctor will be featuring the Raynaud's condition
Tuesday 1st August 2017
Keeping warm for less this winter
Following the announcement that British Gas is to increase its electricity prices by 12.5% from 15th September, we thought it would be a good time to consider how best to keep warm for less this winter. According to the Energy Saving Trust, heating accounts for about 60% of people’s energy bills, so the sooner you get your house winter-ready, the better!