Wednesday 5th July 2017
On average it takes 17 years for an idea for a medical product to be developed, tested in studies and trials, and become publicly available. Charities have an important role in supporting medical research that leads to breakthroughs, and ultimately licensed treatments.
Wednesday 21st June 2017
A pioneering new mobile testing clinic will allow Leeds residents to undergo screening for two little-known conditions.
Wednesday 7th June 2017
Dr Elaine Morrison, Consultant Rheumatologist, along with the clinical team at the QEUH, invited SRUK to visit their Connective Tissue Clinic on Friday 26th May 2017.
Tuesday 16th May 2017
We at SRUK have been working towards becoming members of the Association of Medical Research Charities (AMRC) over the past year and are pleased to announce that our application was accepted at the end of April. This is a great achievement for the charity, as membership is the hallmark of quality research funding and considerably increases the value of grants that we award.
Friday 31st March 2017
On the 31st March 2017, SRUK celebrates its first year of existence following the merger of the Raynaud's & Scleroderma Association (RSA) and Scleroderma Society.
Tuesday 28th March 2017
Today, MPs will meet in Parliament to debate the implementation of the UK Strategy for Rare Diseases in England. This is a unique opportunity for us to raise awareness of the problems facing patients and families affected by rare conditions in accessing a timely diagnosis, coordinated care and appropriate treatment.
Tuesday 28th February 2017
Monday 28th November 2016
SRUK will be supporting Rare Diseases Day February 2017.
Monday 5th September 2016
Our first ever Annual Conference was held in August 2016 and was a great success. It brought together key industry leaders and medical professionals to present on the latest research, methods of diagnosis, treatments and managing the condition.
Friday 22nd July 2016
During June we launched our first public facing awareness campaign to highlight the signs and symptoms of Raynaud’s and the link between Raynaud’s and Scleroderma.
