Raynaud's Awareness Month 2019
Start planning for 2019. We need you to continue to help increase awareness and understanding of Raynaud's and why it is important that everyone knows the signs and symptoms. To help raise awareness here's a poster you can put up in your medical centre or GP surgery. And find out about our impact in 2018.
What is Raynaud's?
Raynaud's affects millions of us yet we often remain undiagnosed or left to deal with the impact alone.
Find out more about Raynaud's, the symptoms, treatments and ways to manage the condition and live your life.
Get your friends, family or co-workers to unite for Raynaud's by organising a coffee morning. Cosy up with some cake and a coffee, and raise money to improve early diagnosis.
Cosy up with a CoffeeRare Disease Day
Find out how people got involved in Rare Disease Day on 28th February and helped raise awareness of rare diseases such as scleroderma. Show your rare, show you care.#ShowYourRare
What impact did we make in 2017?
For Raynaud's Awareness Month 2017, we called on everyone to unite and create a world where there is much greater awareness and understanding of the condition and its impact, a world where diagnosis happens earlier and much better treatment and care is available to everyone who is affected.
Share your Story #FirstFlare
Share your first symptom of Raynaud's on Twitter using #FirstFlare and @WeAreSRUK or tell us via this form about your Raynaud's and managing at home, treatments, or Raynaud's and work.
Share your story
New report on impact of rare autoimmune rheumatic diseases
RAIRDA has published a report looking at the shared experiences of people living with rare autoimmune rheumatic diseases, the impact of these conditions, and their unmet needs in accessing timely and effective healthcare.
Read the report