Suzie's Raynaud's Story
Paramedic Suzie didn't know she had Raynaud's until a colleague mentioned the possibility.
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Personal stories - Raynaud's
We are incredibly grateful to everyone who has shared with us their personal stories of living with Raynaud's and scleroderma. As well as continuing to raise awareness, sharing experiences and talking about all the various aspects of living with these conditions provides an essential resource that is always available when someone is looking for some information and support.
Could you share your story with us? Everyone's journey is different so whatever your experience, we would love to hear from you. Please get in touch with us if you would like some more information, and we will be very happy to help you.
Steph's Raynaud's Story
Steph has been living with Raynaud's since she was a teenager
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Caroline's Story
For Caroline, a 40-year-old veterinary surgeon from Milton Keynes, the winter months can be problematic.
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Amy's story
Teenager Amy talks about her fight with Raynaud’s
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William's Raynaud's story
William Bloodworth, Age 9, from Sheffield doesn't let his Raynaud's get in the way of his love of sports.
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Meet Chloe
Meet Chloe who has Raynaud's
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Chelsea's story
Read Chelsea's story of living with extreme Raynaud's.
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Claire and Lewis's story
Claire and Lewis share the challenges of doing every-day tasks
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I have a story to tell
Share your stories of Scleroderma and Raynaud's.
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Diane's story
Diane's story of Secondary Raynaud's.
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Lorraine's Raynaud's story
Hear Lorraine's experiences of Raynaud's, and later developing Scleroderma.
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Personal Stories - Scleroderma
Our Community share their personal Scleroderma stories
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Deb's Raynaud's Story
Deb lived with Raynaud's for many years before being diagnosed.
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Sharon's Story
Sharon is newly diagnosed with Raynaud's and Scleroderma and shares her story of how it affects her everyday life.
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SRUK latest news
See all newsTuesday 19th March 2024
Imperial College London's 'Science in Medicine School Teams Prize 2024' now open for entries
The Scleroderma and Raynaud’s UK sponsored 'Science in Medicine School Teams Prize 2024' contest is now open for entries. The contest aims to engage sixth form school students with science in medicine, and challenges students to prepare an ePoster with a novel vision on how to promote the health and well-being of individuals with Scleroderma and/or Raynaud’s. If you're interested in entering, or know someone in sixth form who might be, read on to find out more!
Wednesday 28th February 2024
SRUK says Energy companies must step up support for people with Raynaud's.
As high bills continue to threaten the health of those living with the debilitating condition; SRUK is appealing to energy companies to provide financial assistance to them.
Tuesday 19th December 2023
The Mouth in Scleroderma - Tools to Help Dentists Better Understand Your Condition
In 2021 SRUK funded a research project led by Professor Liz Walker, based at the University of Hull, entitled 'Scleroderma in the Mouth: Improving Pathways to Care'. The project focusses on improving oral and dental care in Scleroderma to help improve quality of life. The team have recently produced some useful materials to foster greater awareness of the oral manifestations of Scleroderma amongst dentists. Read on to access a video and information card which you can show to your dentist to help them learn more about your condition and how it affects your oral health.