News

Tuesday 30th May 2023

The CRISTAL Index: Improving the assessment of new scleroderma treatments in clinical trials

One of SRUK’s central objectives is to advance research that will lead to the development of new and effective treatments. But how do we make sure that new therapies will be effective? Recently, SRUK has funded a US-based research project that will help to ensure that potential treatments are effective in ways that are relevant to both patients and clinicians. This could be vital in giving people living with the condition access to treatments that work for them.

Wednesday 10th May 2023

Imperial College London's 'Science in Medicine School Teams Prize 2023' now open for entries!

The Scleroderma and Raynaud’s UK sponsored 'Science in Medicine School Teams Prize 2023' contest is now open for entries. The contest aims to engage sixth form school students with science in medicine, and challenges students to prepare an ePoster with a novel vision on how to promote the health and well-being of individuals with Scleroderma and/or Raynaud’s. If you're interested in entering, or know someone in sixth form who might be, read on to find out more!

Thursday 26th May 2022

Getting a Grip on Scleroderma: Double Hand Transplant for Scleroderma Patient

A British man has become the first Scleroderma patient to receive a double hand transplant for the condition, giving him a new lease of life and prompting hope for many of those most severely affected by the condition.

Tuesday 10th May 2022

The VEDOSS Project – Predicting the Progression of Raynaud’s to Systemic Sclerosis

New research suggests the ‘VEDOSS’ Criteria could be used to accurately predict which individuals living with Raynaud's are likely to progress to Systemic Sclerosis, prompting further hope regarding the early detection and treatment of the condition.

Friday 7th May 2021

The Raynaud’s App: the story so far

SRUK is pioneering ‘The Raynaud’s ResearchApp,’ that aims to help identify Raynaud’s patients at risk of developing scleroderma, with a view to achieving earlier diagnosis and improved outcomes. The technology also enables users to record their experiences of Raynaud’s symptoms and learn more about potential triggers. The App has recently been piloted in a clinical trial.

Thursday 23rd May 2019

6 tips for self-management

Self-management is what an individual can do to manage their condition and to help maintain their wellbeing. How this is approached will differ from person to person, but fundamentally it revolves around making decisions to support a healthy lifestyle, whilst recognising the physical and emotional effects the disease can have.

Thursday 16th May 2019

Meet the Scientist - Professor John Pauling

Here is some insight into John Pauling, Consultant Rheumatologist at the Royal National Hospital for Rheumatic Diseases and Senior Lecturer in the Department of Pharmacy & Pharmacology.

Thursday 2nd May 2019

Can exercise help me?

Here at SRUK, we are strong advocates of people living with Raynaud’s and scleroderma continuing to do the things they enjoy; the benefits of exercise are countless for both physical health as well as mental health.

Thursday 10th May 2018

Early Detection of Scleroderma and Raynaud's: Pipe Dream or Achievable Goal?

Tuesday 1st May 2018

A quick look at 7 medications to treat Pulmonary Hypertension

Pulmonary hypertension is raised blood pressure within the pulmonary arteries, which are the blood vessels that supply the lungs.