Friday 31st March 2017
Our 1st Birthday
On the 31st March 2017, SRUK celebrates its first year of existence following the merger of the Raynaud's & Scleroderma Association (RSA) and Scleroderma Society.
Friday 31st March 2017
On the 31st March 2017, SRUK celebrates its first year of existence following the merger of the Raynaud's & Scleroderma Association (RSA) and Scleroderma Society.
Tuesday 28th March 2017
Today, MPs will meet in Parliament to debate the implementation of the UK Strategy for Rare Diseases in England. This is a unique opportunity for us to raise awareness of the problems facing patients and families affected by rare conditions in accessing a timely diagnosis, coordinated care and appropriate treatment.
Tuesday 28th February 2017
Monday 28th November 2016
SRUK will be supporting Rare Diseases Day February 2017.
Monday 5th September 2016
Our first ever Annual Conference was held in August 2016 and was a great success. It brought together key industry leaders and medical professionals to present on the latest research, methods of diagnosis, treatments and managing the condition.
Friday 22nd July 2016
During June we launched our first public facing awareness campaign to highlight the signs and symptoms of Raynaud’s and the link between Raynaud’s and Scleroderma.