Personal Stories - Scleroderma
Hear from some people who have experience of scleroderma
This is Sian's second blog post for us and in the below video she talks about why she is blogging with Scleroderma & Raynaud's UK and we get to meet her lovely dog, Eddie.
In Sian's last blog she wrote about her scleroderma story from being diagnosed to sharing an excerpt from her diary at the age of 15. Take a read of Sian's first blog post.
Sian loves to sing and is part of a Blues band in Swansea – last year she and her band organised a charity gig to raise money to support SRUK. Below she shares with us a beautiful cover of Adele's 'Make you feel my love'.
Sian has said from the very start she wants her blog to be "frank and honest, depicting the funny, sad, bad and mad situations in which I've had to live and endure my life with Systemic Scleroderma". In her final video she talks about some of the health problems she has dealt with in the last month including problems with her feet and not being able to gain an appointment on the NHS.
Watch out for Sian's next monthly blog in this news section.