Tuesday 28th February 2017
Wednesday 22nd February 2017
Scleroderma & Raynaud’s UK online test helps over 3,000 people establish if they have Raynaud’s
Wednesday 8th February 2017
Running and Raynaud's
How to look after yourself when running.
Monday 9th January 2017
Raynaud's Awareness Month 2017
February 2017 was Raynaud's Awareness Month and SRUK supported it with raise your hands.
Tuesday 3rd January 2017
Stem cells offer new hope for scleroderma
Dan Muscat, 49, developed systemic scleroderma in 2014, in which the skin all over his body began to harden and tighten due to the overproduction of collagen. An experimental stem-cell treatment has meant a "180-degree" turn in Dan's symptoms.
Tuesday 3rd January 2017
Raynaud's and open water swimming
Raynaud’s attacks, usually triggered by the cold causing a lack of blood flow to the extremities, are often mild and manageable; however diving into cold water may cause problems.
Tuesday 13th December 2016
UK Strategy for Rare Diseases
Monday 28th November 2016
Get involved in Rare Diseases Day and help represent Scleroderma
SRUK will be supporting Rare Diseases Day February 2017.
Monday 3rd October 2016
Scleroderma blog by Alison Juggler
Scleroderma is a rare disease that affects the immune system. Your body starts to attack healthy tissue and produce excess collagen, affecting the skin, joints, blood vessels, tendons and internal organs (eek!). The resulting scarring and stiffness varies in severity, but it can be disabling and even life-threatening when you have the most serious type of of scleroderma: systemic. Yep, that’s what my daughter
Wednesday 28th September 2016
Nintedanib Receives Orphan Drug Designation for Systemic Sclerosis
The FDA has granted Orphan Drug Designation to Boehringer Ingelheim’s nintedanib for the treatment of systemic sclerosis (SSc), also known as scleroderma, including associated interstitial lung disease (SSc-ILD). - See more at: http://www.pharmacytimes.com/product-news/nintedanib-receives-orphan-drug-designation-for-systemic-sclerosis#sthash.5ACj39Ga.dpuf