Who we are
We are Scleroderma & Raynaud's UK (SRUK), the only UK Charity dedicated to improving the lives of people with Scleroderma and Raynaud's phenomenon.
We are here to improve awareness and understanding of these conditions, to support those affected, and ultimately, to find a cure.
We currently support twenty-two thousand people in Britain. Our aim is to reach out to every single person who has scleroderma or Raynaud's diagnosis, providing them with the information and support they need.
By creating connections between people with the conditions and professionals, we have built a motivated community that shares knowledge and support, works in partnership on research projects, and speaks up about scleroderma and Raynaud's. We have a stronger voice together.
Our vision is a world where no-one has their life limited by Scleroderma and Raynaud's.
Our mission is to improve the lives of everyone affected by Scleroderma and Raynaud's. We do this by investing in research, improving awareness and understanding of the conditions and providing information and support to all those affected.
What we do
Improving the lives of people with scleroderma and Raynaud's is central to everything we do. We want everyone with the conditions to live as full and unlimited a life as possible, until we find a cure.
Being there for our community when they need us is paramount – we do this through our helpline, local support contacts, support groups and our online forum. We also run regular educational events and have a yearly conference to bring people together.
We are driven to make real progress towards more effective treatments and a cure. We invest in innovative research projects at the forefront of the field.
We also make our voices heard with decision-makers and politicians, pushing scleroderma and Raynaud's to the top of the health and social care agenda.
Scleroderma & Raynaud's UK is the new charity formed by the merger of the Raynaud's & Scleroderma Association (RSA) and the Scleroderma Society.
We launched on 31st March 2016. By bringing the support, expertise and passion of the two organisations together, we have a strong new organisation focused on supporting people with Scleroderma and Raynaud's, funding and campaigning for research into the conditions and dedicated to building better understanding and treatment for everyone affected by them. The video below contains a timeline of the milestones we've reached so far.