WeAreSRUK at Royal Free Scleroderma Family Day
We're meeting leading medical professionals to discuss the latest in scleroderma
We are here to improve awareness and understanding of these conditions, to support those affected, and ultimately, to find a cure.
We currently support twenty-two thousand people in Britain. Our aim is to reach out to every single person who has scleroderma or Raynaud's diagnosis, providing them with the information and support they need.
By creating connections between people with the conditions and professionals, we have built a motivated community that shares knowledge and support, works in partnership on research projects, and speaks up about scleroderma and Raynaud's. We have a stronger voice together.
Our vision is a world where no-one has their life limited by Scleroderma and Raynaud's.
Our mission is to improve the lives of everyone affected by Scleroderma and Raynaud's. We do this by investing in research, improving awareness and understanding of the conditions and providing information and support to all those affected.
Improving the lives of people with scleroderma and Raynaud's is central to everything we do. We want everyone with the conditions to live as full and unlimited a life as possible, until we find a cure.
Being there for our community when they need us is paramount – we do this through our helpline, local support contacts, support groups and our online forum. We also run regular educational events and have a yearly conference to bring people together.
We are driven to make real progress towards more effective treatments and a cure. We invest in innovative research projects at the forefront of the field.
We also make our voices heard with decision-makers and politicians, pushing scleroderma and Raynaud's to the top of the health and social care agenda.
By bringing the support, expertise and passion of the two organisations together, we have a strong new organisation focused on supporting people with Scleroderma and Raynaud's, funding and campaigning for research into the conditions and dedicated to building better understanding and treatment for everyone affected by them.
In April 2017, we became a member of the Association of Medical Research Charities, the national membership organisation of leading medical and health research charities. Membership is an endorsement of the quality of our research funding and is used by universities, government and funding bodies as an indicator of quality. It is a demonstration of our commitment to support research that will lead to improved understanding and, ultimately, more effective treatments. Our investment in research is enhanced through AMRC membership, as funding is eligible for Charity Research Support Fund and AcoRD agreement enhancement of up to 28p per £1.
In 2016 SRUK worked in collaboration to create the Rare Autoimmune Rheumatic Diseases Alliance (RAIRDA). The Alliance is made up of four founding partner organisations, the British Society for Rheumatology (BSR), Lupus UK, Vasculitis UK and SRUK. Rare Autoimmune Rheumatic Diseases Alliance (RAIRDA), a partnership that was formed in 2016 to improve the quality of life of people living with rare autoimmune rheumatic diseases. Having a powerful, single voice on key issues helps raise awareness and opens doors to decision makers in Government and elsewhere. Not to mention the strength to be gained in terms of pooled expertise and resources. Read about how we can find strength in numbers.
Our Annual Report and Accounts 2016/17 reviews our performance for the year, the progress we're making against our objectives and our aims for the future.