Our incredible board of trustees offers a wealth of knowledge and experience covering all aspects of scleroderma and Raynaud's. Their expertise and unrivalled level of insight remain at the heart of the governance and guidance of everything we do at SRUK.
We are currently recruiting for a Patient/Carer Trustee - if you would like to join the board then click here to find out more about what is involved.
Jeremy's background is in scientific research that has furthered our understanding of scleroderma and Raynaud's. He is Associate Medical Director (Research) at the British Heart Foundation, and also spends some time in academia as an Emeritus Chair at Kings College London. He was elected as a Fellow of the Academy of Medical Sciences in 2004 and an Honorary Fellow of the Royal College of Physicians in 2006. He became Chair of the RSA in the lead-up to the formation of SRUK, and continues his work with us as a member of the board of trustees.
Helena enjoyed a successful career in human resource management as an HR director, until her diffuse systemic sclerosis interrupted this in 2003. Later, she went on to lecture in human resource management on a part-time basis at UEL and undertook voluntary work in her local community.
She volunteered on the Scleroderma Society helpline and became helpline manager in 2010. During the same year she worked to obtain accreditation for the helpline through The Helpline Partnership.
Helena became a trustee with the Scleroderma Society in February 2012 and also volunteers with the charity Changing Faces.
David was appointed Consultant Rheumatologist at the Norfolk and Norwich University Hospital in February 1988 and Honorary Professor to Norwich Medical School, UEA in 1998. He “retired" from his NHS post in July 2011, and is now an honorary consultant. David is a former President of the British Society for Rheumatology. He has a long-standing interest in systemic vasculitis and the rarer connective tissue diseases, and has written and lectured extensively on these subjects.
Chris is a qualified chartered accountant and brings over 30 years of financial experience to SRUK. He has lived and worked in various locations in the UK, Asia, Australia, the US and the Middle East. His business experience ranges from being a chief executive for a start-up to being the chief financial officer for Fidelity International, a global investment manager. This is his first venture into the voluntary sector and he is excited to have the opportunity to help to minimise the impact of Raynaud's and scleroderma on peoples' lives.
Susie believes the role of charities is vitally important – both for raising funds for research into rare conditions such as scleroderma and Raynaud's, and for providing reliable and trustworthy information and support for those affected. As a trustee of the former Scleroderma Society, she felt privileged to see the positive impact the charity was able to bring to so many people, and she wishes to ensure that SRUK continues to build successfully on that legacy. Susie's background is in the language industry as production manager with a translation company, and on a personal level, she is a keen amateur runner, cyclist and traveller.
Barry is a retired chartered surveyor and was formerly a trustee of the RSA for over 20 years. He has personal experience of scleroderma because his wife, Sheila, had the condition and was a member of the association when Barry was recruited to the RSA board of trustees. Barry continued his active involvement with the RSA after Sheila passed away in 2005, and will now continue to participate as a trustee of SRUK.
Jason’s career has been concentrated on the future of money and health, creating the next areas of growth for companies in those spaces.
His two decades of experience within Financial Services covers wealth management, retail banking and institutional banking. He has been a founder of his own digital startup and most recently led innovation labs in FinTech and HealthTech.
Jason is an Actuary and began his career that way, before morphing through change management, innovation, business transformation and digital transformation. He is an experienced and passionate practitioner of design thinking, lean startup and agile development and feels most inspired when collaborating with talented people to find breakthrough solutions to big problems.
His work has taken him from Sydney to New York and on to London. At home, Jason enjoys expanding his horizons and making music, especially with his daughters.
Dr Jitinder Saini
Jit’s background is in clinical medicine, having practiced gastroenterology and hepatology in the NHS for a number of years before joining the pharmaceutical sector. Jit has held various leadership roles in large biotech companies, including at executive board level, currently heading up Medical Affairs for Europe, Middle East and Africa for a global specialty innovator. Having just returned to the UK having lived in Switzerland, France and Germany, Jit is delighted to be able to serve as a trustee for SRUK and is grateful for the opportunity to serve patients through the important work of the charity.