Friday 6th August 2021
Dr Victoria Flower was awarded funding by SRUK to research non-invasive methods of skin assessment in scleroderma. Last month, her work was published in The Journal of Rheumatology, discussing the potential use of High Frequency Ultrasound as a more objective and detailed measure of skin involvement in scleroderma.
Tuesday 3rd August 2021
A father from Greater Manchester, whose six-year-old daughter has the rare autoimmune disease scleroderma, has raised more than £7,000 for SRUK to help fund research into the condition
Thursday 29th July 2021
As the UK strives to give every adult their COVID-19 vaccinations, what do we know about their effectiveness in protecting those with weakened immune systems such as some individuals with scleroderma?
Thursday 22nd July 2021
Are you reading this from a touchscreen device? Using touchscreen technology is something many of us do every day, without even thinking about it. But what happens to the people who have conditions that make touchscreens tough?
Friday 16th July 2021
Systemic sclerosis-associated pulmonary arterial hypertension (SSC-PAH) occurs when fibrosis causes the walls of the pulmonary arteries to thicken, raising their blood pressure and placing additional strain upon the heart. The early signs of SSc-PAH include persistent breathlessness, that may be so mild at first that you hardly notice it. If this sounds familiar, tell your doctor.
Thursday 8th July 2021
“We are limited by current assessment tools such as the skin score, which is limited by subjectivity, as well as the time needed for training and standardisation. We need to make sure that new treatments are evaluated in the best and most robust way so that we can make more progress and discontinue approaches that do not work.” Prof. Chris Denton
Thursday 24th June 2021
SRUK funding is playing a key role in improving how we determine the success of new treatments in clinical trials. These projects aim to better inform researchers of the impact of potential therapies, ultimately improving wellbeing and quality of life for people living with scleroderma.
Thursday 24th June 2021
"A diagnosis, no matter what diagnosis, can be bad news but also good news. For most of us, the diagnosis is a relief. Now we can team up with others just like us, and the best teams are via the patient organizations. We can start a treatment; we are ready to fight back."
Friday 11th June 2021
People across the UK are being invited to lace up their trainers and get walking this summer in aid of people living with a chronic, life-limiting autoimmune condition called scleroderma
Thursday 10th June 2021
A coalition of charities, including SRUK has written an open letter to employers, calling for them to put protective measures in place for staff who may have reduced protection from the COVID-19 vaccine.
