Tuesday 29th April 2025
Almost one-third of UK rare rheumatic patients face a five-year wait for diagnosis
A new report by (RAIRDs) highlights the struggle to access diagnosis and care for rare autoimmune rheumatic disease patients.
At SRUK we are devastated to hear that a young girl, Holly Monk, has sadly died and our thoughts are with her family and friends at this time.
We understand that Raynaud's was impacting her life. Raynaud's is a common condition affecting up to 10 million people in the UK. For many it will be mild and manageable but for others the condition can be extremely debilitating, with every day tasks becoming impossible during an attack.
In severe cases of Raynaud's, drugs may be prescribed, which widen the blood vessels and reduce the frequency and severity of attacks. The drug in question, Hydroxychloroquine, is a drug prescribed to regulate activity of the immune system in autoimmune conditions, such as rheumatoid arthritis or lupus and is not prescribed directly for Raynaud's.
1 person in every 100 who has Raynaud's will go onto develop an autoimmune condition and so it is important to recognise if you have the condition and whether you are at risk. If you are concerned that you may have the condition please visit www.sruk.co.uk/testme to take a Raynaud's test.
For those who are taking medication to manage conditions, it is important to take the medication as prescribed by a health professional. If symptoms are persistent, the medication is not working for you or side effects are troublesome, please visit a GP to discuss options. We would urge anyone taking medication to not take more than the prescribed dosage as this can lead to a devastating outcome.
Tuesday 29th April 2025
A new report by (RAIRDs) highlights the struggle to access diagnosis and care for rare autoimmune rheumatic disease patients.
Tuesday 1st April 2025
The impact of the Government’s recent Spring Statement will be felt across our community. Many people living with Scleroderma and Raynaud's could face new hardship, as they are forced to rely on disability benefits and financial help just to get by.
Thursday 14th November 2024
This Raynaud’s Awareness Month, we are calling on the public to #BePartOfTheAnswer and join the thousands of people already involved in what we hope will be the largest-ever study into Raynaud's. You can help us by sharing the online test with your own family and friends, and encourage them to find out if they could be living with Raynaud's.