We're Here to Support You
Whether you're newly diagnosed or have been living with it for years, we can offer support and information to help you on your Raynaud's or Scleroderma journey.
We have everything from in-depth booklets on individual symptoms to a helpline that operates 365 days a year. Not sure where to start? Click one of the buttons below
SRUK is dedicated to improving the lives of people with scleroderma and Raynaud's phenomenon
Our mission is to improve the lives of everyone affected by scleroderma and Raynaud's. We do this by investing in research, improving awareness and understanding of the conditions and providing information and support to all those affected.
Receive our Newsletter to keep up-to-date with the latest news and developments
The London Landmarks Half Marathon is 13.1 miles of fun running, with fantastic sights, entertainment along the route and our SRUK cheer squad to keep you going. It's an event not to be missed, when you run for SRUK you'll get a running vest, dedicated support from the day you sign up and a huge feeling of pride that you are helping people with scleroderma and Raynaud's.
Join us on 7th April 2024 - sign up quickly as places are limited.
SRUK latest newsSee all news
Tuesday 28th November 2023
Sharing Data to Improve Lives: The SRUK Patient Registry Survey
SRUK is developing a Patient Registry, with the aim of improving outcomes for people diagnosed with Scleroderma or Raynaud's. Our Registry will be a secure, anonymous database, containing health information about people living with the conditions. It will be used to improve our understanding of Scleroderma and Raynaud's and how different people are affected over time, to help accelerate research into new and better treatments designed to improve quality of life. Read on to find out what we learned through the SRUK Patient Registry Survey, and how it will help shape our Patient Registry.
Wednesday 22nd November 2023
SRUK's response to the Autumn Statement
SRUK asks the Chancellor to consider the impact of changes to disability benefits on people with scleroderma and we renew our call for more support with energy bills for those that need it most.
Tuesday 21st November 2023
Government must expand Cost of Living Payments to protect health of those living with Raynaud's Phenomenon
Ahead of the Chancellor's Autumn Statement we are calling on the government to expand its Cost of Living Payment criteria to include people living with Raynaud’s Phenomenon.
Give us your website feedback
Help us make our website best suit the needs of our community