什么是硬皮病？
Scleroderma is an umbrella term that refers to the various different types of this rare and complex condition.
Information about Scleroderma
Localised Scleroderma
This only affects the skin, causing one or more patches of hardened skin to develop on the body.
硬皮病的体征和症状
Everyone’s experience of scleroderma is different. It depends on what type you have, how severe it is, and what parts of your body are affected.
Managing your scleroderma symptoms
Find out more about how to manage your scleroderma symptoms
儿童硬皮病
When your child is diagnosed with scleroderma it is important to have reliable information and support when you need it.
有关硬皮病的常见问题
Everyone has questions about scleroderma, and here we have compiled some of the most common questions we are asked about scleroderma.
与硬皮病相关的疾病
People with scleroderma may also have other associated conditions, including Lupus, Vasculitis and Sjögren's.
Link between Raynaud’s and Scleroderma
Find out how Raynaud’s and scleroderma are associated
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Amanda's story
“When I was fully diagnosed I went into severe depression and began to take medication for depression, which I later found out was exacerbating some of the symptoms.”
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Matilda's story
“We try to talk about it a lot and never lie to Matilda about what’s happening. We didn’t want to talk about scleroderma at first, but I think that made it scarier. Now we try to be more open about it to help Matilda feel more comfortable”
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Ruth's story
“It's tough living with multiple autoimmune conditions at a young age and in the prime of my career. I find myself mourning my old body and my old life – the days when I could just get up from bed, go up and down the stairs without being breathless”
Publications on Scleroderma
Newly Diagnosed with Scleroderma
A quick guide for those who are newly diagnosed with scleroderma
We're here to support
If you would like further information, support or advice please do get in touch!