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Contact

Contact Contact us If you have any questions, comments, queries, or suggestions, do please get in touch with us. We also appreciate any feedback that you may have, as this enables us to keep improving...

Privacy and cookies

...users. Wherever possible we use aggregated or anonymous information, which does not identify individual visitors to our websites. How do we use this information? We will use your personal informati...

Support Groups

...contact us using the form below. Alternatively, you can telephone us on 020 3893 5998 or email: info@sruk.co.uk . You can also search the locations of the Support Groups using the location search on o...

Stay in touch

...us via email: info@sruk.co.uk Stay in touch with us Yes please, I'd like to hear from you by email ...

Keep in Touch Support Service

...using the service, please contact our main number on: 020 3893 5998. Please confirm with our volunteer the person you are referring has agreed to be contacted by the volunteer. Frequently Asked Questi...

Bucket Collections

...us experience Hobbies and interests Any requirements the charity will need to take into consideration Do you have any previous criminal convictions? Yes No How would you like us to stay in contact? I'...

Support Groups

...use the form to contact us. Norfolk Lucy My name is Lucy and I am the local contact for Norfolk. I have lived just outside Norwich all my life, and so have most of my family and friends. I have had Ra...

Volunteer collection tin coordinator

...us experience Hobbies and interests Any requirements the charity will need to take into consideration Do you have any previous criminal convictions? Yes No How would you like us to stay in contact? I'...

Become a member

...use the safe online membership form below. If you need further help please find our contact number on the contact us page. Make your subscription go further Make your membership subscription go furthe...

NCS Flashmob

...ust in time for the theatre production of Hairspray. If you have some ideas for fundraising that you'd like to discuss get in contact with us on info@sruk.co.uk . "Our group was a team from an associa...

Volunteer cheerer

...us criminal convictions? Yes No How would you like us to stay in contact? I'd like SRUK to contact me by: Email Telephone Post Text message None of the above. We are looking for enthusiastic volunteer...

World Scleroderma Day

...contact us or call our free helpline on 0800 311 2756. Download World Scleroderma Day Poster Scleroderma is a rare, chronic disease of the immune system, blood vessels and connective tissue. 2.5 milli...

Events

...Use platforms like Zoom, WhatsApp or Houseparty to invite people and ask for a donation. Contact us For more information about any of our event fundraising please contact our friendly fundraising team...

Murder Mystery Night

...us at a time when your support has never mattered more. If you're a bit of an armchair detective and want to use your sleuth skills, then you'll love this virtual get together with a mind-boggling mys...

Share your story

...us smile Help us increase understanding of scleroderma and Raynaud's by sharing your story with us here.

Volunteer Photographer

...us experience Hobbies and interests Any requirements the charity will need to take into consideration Do you have any previous criminal convictions? Yes No How would you like us to stay in contact? I'...

Student Ambassador

...us experience Hobbies and interests Any requirements the charity will need to take into consideration Do you have any previous criminal convictions? Yes No How would you like us to stay in contact? I'...

Volunteer videographer

...us criminal convictions? Yes No How would you like us to stay in contact? I'd like SRUK to contact me by: Email Telephone Post Text message None of the above. We're looking for an enthusiastic and cre...

Stories terms and conditions

...us a royalty-free, non-exclusive licence to publish and otherwise use the material in any way that we want, and in any media worldwide. However, you will still retain the ownership of the content you ...

Cosy up with a Coffee

...us by hosting a Cosy Up With A Coffee event in your community. Get your friends, family or co-workers to unite for SRUK by organising a coffee morning. Cosy up with some cake and a coffee, and raise m...

Youth Advisory Board

...uss the current challenges and prioritise work items to focus on over the coming years. The priorities are: Well being – building confidence to communicate and manage their condition Education – incre...

The STRIKE Study

...use the Raynaud's App, see the SRUK Raynaud's App User Guide . By using this App daily, your contribution will help us to better understand the condition. If you have any further queries, please cont...

Raynauds - Newly Diagnosed

...uss different issues and share advice. You can also help us to raise awareness of scleroderma and Raynaud's by sharing web pages using the share buttons at the top left. Join our online community Our ...

Helpline

...us a message and we will get back to you, but do bear in mind it might take a little longer than usual.* Our Helpline volunteers Our Helpline team are volunteers, they are not medically qualified and ...

Work for a Growing Health Charity in London

...use your expertise and initiative to sustain and increase this growth. You will be using an audience-led approach to identify and create new and innovative opportunities - developing campaigns and app...

I have a story to tell

...us on Twitter and Facebook, sharing our posts and links to this web page using the icons on the top left of this page, and offering support to others with Scleroderma and Raynaud's using #raiseyourhan...

Rare Disease Day

...Contact: Rare Diseases Day, SRUK, 18-20 Bride Lane, London, EC4Y 8EE. Email us at: info@sruk.co.uk Help represent Scleroderma as a rare disease. Latest News Digital Ulcers – Capturing The Patient Expe...

Coronavirus - Assessing Your Risk

...us (clinically extremely vulnerable) Pregnancy and coronavirus Advice about your condition and coronavirus Full advice on protecting yourself from coronavirus if you're at high...

Extra Fundraising Resources

...contact us if you need more information. Doing a special event for SRUK and want to share your story or just promote your event? Here is our handy template which will give you an idea of what to inclu...

General Information On Coronavirus (COVID-19)

...use, or thrown away if they are disposable. 8. Is there a vaccine for coronavirus? At present, because this virus is so new and so different, a vaccine still needs to be developed. Researchers are try...

Leave a gift in your Will

...useful to you. If you have any other questions, or you would prefer to discuss it with someone in more detail, please contact us on 020 7000 1925 How would a gift in my Will help SRUK? SRUK receives...

Help & Support

...us guidelines and advice that are being updated regularly. Help and support during the coronavirus pandemic We are still providing a full range of information and support services. We ha...

The mind and mindfulness

...ust to sleep, but to sit down and read a book or listen to music. Tips on avoiding fatigue: Use technology where possible, e.g. a dishwasher or ergonomic device Use a shopping trolley when out shoppin...

Scleroderma - Newly Diagnosed

...use they become expert in knowing how to avoid situations that provoke Raynaud's attacks. Also, especially in patients with the diffuse cutaneous type of scleroderma, skin thickening often reduces aft...

Coping With Self-Isolation

...us must be on your physical health, it is easy to overlook the psychological impact of scleroderma and the wider repercussions that this can have on your life. Mindfulness is all about paying mo...

Terms & Conditions

...Contacting us If you are uncertain about anything in these Terms and Conditions please send an email to info@sruk.co.uk or write to us at our registered office at the address above. Use of the W...

About SRUK

...us is paramount – we do this through our helpline, local support contacts, support groups and our online forum. We also run regular educational events and have a yearly conference to bring people toge...

Meet our 2019 London Marathon Runners

...ust how much these conditions can have an impact on people's lives. ' You can see Hannah's amazing fundraising page here Marcus Marcus received a ballot place in this years London Marathon and decided...

Occupational Therapy

...using mobility aids, including carrying out a wheelchair assessment. Use of relaxation techniques - In the busy modern world, few of us prioritise making time for rest and recuperation. Having enough,...

Schools A-Z

...usic show/concert/practice – This could be an existing concert, asking musical pupils to play in a gig or getting sponsored to practice their musical instruments. N Non uniform day Netbal...

Employment

...use their discretion thereafter. What should I do if someone in my household is in the 'high risk' group for coronavirus? The whole household does not need to self-isolate if someone is classed as ext...

News:

#KnowRaynauds Media Pack

...us in this way, we are grateful to you. Should you need any further information, support, imagery or just a chat about it all, please contact us at info@sruk.co.uk or call 0207 000 1925. ...

7 handy hints for keeping warm this winter

...use the most. If you can't afford a draught excluder for under the doors, you can use old towels, pillows or cushions. 4. Get supplies in early If your home is heated solely through f...

9 questions you may have about scleroderma

...use they become expert in knowing how to avoid situations that provoke Raynaud's attacks. Also, especially in patients with the diffuse cutaneous type of scleroderma, skin thickening often reduces...

9 questions everyone newly diagnosed has

...use they become expert in knowing how to avoid situations that provoke Raynaud's attacks. Also, especially in patients with the diffuse cutaneous type of scleroderma, skin thickening often reduces...

Scleroderma blog by Alison Juggler

...usually long-term treatment. So at the moment she is off all medication (the Methotrexate was accompanied by various other drugs and required monthly blood tests to check it wasn't doing too much dama...

Raynaud’s: Managing symptoms and avoiding triggers

...use disruptions in how the nervous system controls blood vessels but exactly what causes these disruptions is unclear. There is some evidence that primary Raynaud's may be an inherited condition, as c...

Can exercise help me?

...usses more on lifting and pulling against resistance and is more commonly referred to as weight-training. This can involve the use of dumbbells, bodyweight, machines, kettlebells, powerbands or other ...