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Tamikea’s story
It all began when Tamikea went to A&E with severe chest pains and the doctors discovered she had pericarditis which they suggested was a result of Covid. But Tamikea was not convinced.
The Rare Autoimmune Rheumatic Disease Alliance (RAIRDA)
RAIRDA is an alliance bringing together patient organisations to campaign for improved care for people living with rare autoimmune rheumatic diseases in the UK
Federation of European Scleroderma Associations (FESCA)
FESCA is the European-wide scleroderma association
Nifedipine
This is the only medicine licensed to treat Raynaud's phenomenon in the UK
Losartan
Read more about Losartan which can help with Raynaud's symptoms
Sildenafil
Sildenafil/ Viagra can be used in both men and women to treat the symptoms of Raynaud's
Diltiazem
Diltiazem can be used to treat Raynaud's. It works by causing some of your blood vessels to relax and widen.
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Iloprost
Find out more about what Iloprost is, why it's prescribed and how it works
Kidney Involvement in Systemic Sclerosis (SSc)
Kidney or renal involvement in systemic sclerosis may be mild or very serious in nature.
Heart Involvement in Systemic Sclerosis (SSc)
Systemic sclerosis can directly affect the heart, placing some people at a greater risk of heart disease.