Open quote

"I now appreciate more than ever time with family and friends and grasp every opportunity to do things, go places etc as you never know what's round the corner. It has taught me not to waste time on things that are really not important and how important it is to have good healthcare."

Close quote

Diane, 58, diagnosed with systemic sclerosis

Understanding scleroderma

"I now appreciate more than ever time with family and friends and grasp every opportunity to do things, go places etc as you never know what's round the corner. It has taught me not to waste time on things that are really not important and how important it is to have good healthcare."

Diane, 58, diagnosed with systemic sclerosis

If you or someone you care about has been diagnosed with scleroderma, this can understandably be quite frightening. It is very important however to have the right level of information and support, to help you to understand exactly what the diagnosis is, what the condition means and what treatment and management options are available. Doing the research may be difficult at first, but remember that in ensuring that you are fully informed about your diagnosis you will feel better empowered to ask questions at appointments and make decisions about your treatment and care.

If you would like any support or to talk to someone who have been through a similar experience, please call our helpine on 0800 311 2756 or join our online community.

Please follow the links below for more information on all aspects of scleroderma, and of living with this complex and little-known condition.