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Raynaud's
  • Информация
  • Политика и адвокация

Budget 2025 – People with Raynaud’s can’t wait another winter for action

Budget fails to deliver winter energy relief for people living with Raynaud's
Raynaud's
  • Информация
  • Политика и адвокация

Chancellor must act on energy costs to protect people with Raynaud’s

We are calling on Chancellor Rachel Reeves to take action in the Budget, as people living with Raynaud’s face increased pain, distress and financial pressure this winter as temperatures plummet.
Raynaud's
  • Информация
  • Политика и адвокация

People living with Raynaud’s face winter of pain due to high energy prices

We have today warned that people living with Raynaud’s could face increased pain, distress and financial pressure this winter as temperatures plummet and energy costs remain very high.
A man and woman wearing warm clothing including beanies and gloves
  • Partnerships

Heat Holders and SRUK – The Perfect Partnership

Together, Heat Holders and SRUK can combine their expertise, passion, and resources to make a meaningful difference, offering practical solutions to those who are most affected by the cold.
Research
  • Новости исследований

SRUK welcomes MHRA rare diseases overhaul statement

We welcome the recent release of a new paper setting out the Medicines and Healthcare products Regulatory Agency’s (MHRA) intention to overhaul the rules for rare disease treatments in the UK.
a young girl wearing an SRUK tshirt is smiling at the camera against a background of rocks on a mountain
  • Новости фандрайзинга

Ella, 8, summits Snowdon in aid of SRUK

Eight-year-old Ella Hetherington has raised more than £2,000, after climbing Mount Snowdon with her family to support the SRUK.
Poppy with cheque
  • Новости фандрайзинга

Poppy takes on Junior Warrior course to raise hundreds for SRUK

An inspirational eight-year-old tackled the Junior Warrior 2025 challenge to raise hundreds of pounds for SRUK.
A man wearing an SRUK vest standing by the John O'Groats sign with his bike
  • Новости фандрайзинга

Epic 1,000-mile cycle from Land’s End to John O’Groats in support of SRUK

Darren South, from Bishopstoke, Eastleigh, has successfully completed an impressive 1,000-mile cycle from Land’s End to John O’Groats in just 10 days, raising vital funds and awareness for Scleroderma
Kiall Kelly on his bike
  • Новости фандрайзинга

На установление мирового рекорда в Европе его вдохновил юный брат

Киалл Келли, один из участников Лондонского марафона SRUK, который в следующем году примет участие в сборе средств, попытается установить мировой рекорд Гиннесса.
Medical waiting room
  • Новости исследований

Почти треть пациентов с РАИРД сталкиваются с пятилетним ожиданием диагноза

Некоторые люди с редкими аутоиммунными ревматическими заболеваниями (РАИРЗ) сталкиваются с серьезными препятствиями в получении медицинской помощи и лечения: почти одна треть из них ждет диагноза более пяти лет.
Hands in mittens being warmed by a hot drink
  • Политика и адвокация

Реакция на весеннее заявление правительства

Последствия недавнего "Весеннего заявления" правительства будут ощущаться во всем нашем обществе. Многие люди, живущие со склеродермией и болезнью Рейно, могут столкнуться с новыми трудностями.
Hand with white finger tips
  • Campaigns

Be Part of the Answer for Raynaud’s Awareness Month

This Raynaud’s Awareness Month, we are calling on the public to #BePartOfTheAnswer and join the thousands of people already involved in what we hope will be the largest-ever study into Raynaud's.

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