Apply to take part in an observational trial
There have been massive leaps forward in our understanding and treatment of many conditions over the past century, from polio vaccinations to chemotherapy for cancer, as a result of research. In the past 30 years, research has improved our understanding and management of Scleroderma and Raynaud's. With “I am research" we hope to;
Research is important to the lives of people with Scleroderma and Raynaud's as the more we find out, the better we understand the causes and progression of the conditions, and this enables us to find treatments and work towards a cure.
At SRUK we fund innovative Scleroderma and Raynaud's research projects. We inform you about the latest developments, the latest medication being used in practice and possible new treatments.
We usually fund small pilot studies, and researchers are often able to apply for further funding based on the results of the studies. By helping with research and trials or donating, you're helping to progress these studies. You can find out more about our current research projects here.
We also support the wider research community by communicating the results of research, attending and organising conferences and events to provide information, and assisting researchers recruit patients for clinical trials.
There are many reasons to get involved in research and trials. Based on a national survey, NIHR has pulled together 10 reasons for the public, patients and health professionals to get involved in research:
It made me realise I'm not alone in my illness
Without patients getting involved it wouldn't be possible for us to carry out this life changing research
Whether it's now or in the future, I feel like I'm giving something back
I learnt more about my condition and met others in the same situation
It helps me understand what the latest treatments are and how I can use them to benefit my patients
As far as I'm concerned, it saved my life
I feel more confident about managing my condition having spoken to the researchers on a regular basis
It gave me access to the latest treatments and regular monitoring for my condition
We are striving to develop better treatments and care for our patients
My research made me feel more in control of my care
If you want to know more about why we need clinical trials have a look at the below video, and then watch Bernadette's video with her talking about why she got involved in research and her experiences: