Why we need research

Whether we are people affected by the conditions, the public or health and social care research professionals, we all benefit from the results of research.

There have been massive leaps forward in our understanding and treatment of many conditions over the past century, from polio vaccinations to chemotherapy for cancer, as a result of research. In the past 30 years, research has improved our understanding and management of Scleroderma and Raynaud's. With “I am research" we hope to;

  • Raise awareness of the benefits of research and the positive impact it has on people's lives.
  • Explain why and how you can get involved in research and trials.
NIHR I Am Research - Bernadette's story

SRUK research

Research is important to the lives of people with Scleroderma and Raynaud's as the more we find out, the better we understand the causes and progression of the conditions, and this enables us to find treatments and work towards a cure.

At SRUK we fund innovative Scleroderma and Raynaud's research projects. We inform you about the latest developments, the latest medication being used in practice and possible new treatments.

We usually fund small pilot studies, and researchers are often able to apply for further funding based on the results of the studies. By helping with research and trials or donating, you're helping to progress these studies. You can find out more about our current research projects here.

We also support the wider research community by communicating the results of research, attending and organising conferences and events to provide information, and assisting researchers recruit patients for clinical trials.

Why should I get involved?

There are many reasons to get involved in research and trials. Based on a national survey, NIHR has pulled together 10 reasons for the public, patients and health professionals to get involved in research:

It made me realise I'm not alone in my illness

Without patients getting involved it wouldn't be possible for us to carry out this life changing research

Whether it's now or in the future, I feel like I'm giving something back

I learnt more about my condition and met others in the same situation

It helps me understand what the latest treatments are and how I can use them to benefit my patients

As far as I'm concerned, it saved my life

I feel more confident about managing my condition having spoken to the researchers on a regular basis

It gave me access to the latest treatments and regular monitoring for my condition

We are striving to develop better treatments and care for our patients

My research made me feel more in control of my care

If you want to know more about why we need clinical trials have a look at the below video, and then watch Bernadette's video with her talking about why she got involved in research and her experiences:

Get involved

  • Take part in a trial. This is a list of trials in the UK
  • Donate and help us achieve our vision of a world where no-one has their life limited by Scleroderma and Raynaud's
  • Become an Advocate and promote health research from a patient perspective by tweeting or using Facebook with @WeAreSRUK
  • Use #SRUKResearch on Twitter or Facebook to tell us what you think about research
NIHR 'I Am Research' 2017 - Young persons perspective

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