Dawn was diagnosed with Scleroderma in 2008. She got an epilepsy diagnosis in February 2007 and because of the red spots (telangiectasia) on her body she was referred to dermatology in case this was Lamictal rash (the epilepsy medication).
Like any condition, early diagnosis is vital but as Scleroderma progresses uniquely to everyone, having an arsenal of information about your symptoms can help inform healthcare professionals.
Dawn was diagnosed with Scleroderma in 2008. She got an epilepsy diagnosis in February 2007 and because of the red spots (telangiectasia) on her body she was referred to dermatology in case this was Lamictal rash (the epilepsy medication). She noticed the red spots quite some time before. The dermatologist invited her along as a patient case study to a seminar for assistance with diagnosis. All dermatologists visiting said to refer to rheumatology. She was referred to the regional expert in NI for diagnosis but due to delays she was not seen. The dermatologist was disgusted and pushed for diagnosis again with the regional expert who she then saw months later. After a nail fold capillaroscopy and a large scale set of bloods an accurate diagnosis was finally made.
Dawn, 43, of Magherafelt in County Londonderry, said: “Like any condition, early diagnosis is vital but as Scleroderma progresses uniquely to everyone, having an arsenal of information about your symptoms can help inform healthcare professionals. I am delighted to be part of the #SayScleroderma film and help raise awareness of the complexity of this condition. I hope it encourages people in pain to come forward and get the referral they need.”