- Information
- Policy and advocacy
Budget 2025 – People with Raynaud’s can’t wait another winter for action
Budget fails to deliver winter energy relief for people living with Raynaud's
- Information
- Policy and advocacy
Chancellor must act on energy costs to protect people with Raynaud’s
We are calling on Chancellor Rachel Reeves to take action in the Budget, as people living with Raynaud’s face increased pain, distress and financial pressure this winter as temperatures plummet.
- Information
- Policy and advocacy
People living with Raynaud’s face winter of pain due to high energy prices
We have today warned that people living with Raynaud’s could face increased pain, distress and financial pressure this winter as temperatures plummet and energy costs remain very high.
- Partnerships
Heat Holders and SRUK – The Perfect Partnership
Together, Heat Holders and SRUK can combine their expertise, passion, and resources to make a meaningful difference, offering practical solutions to those who are most affected by the cold.
- Research news
SRUK welcomes MHRA rare diseases overhaul statement
We welcome the recent release of a new paper setting out the Medicines and Healthcare products Regulatory Agency’s (MHRA) intention to overhaul the rules for rare disease treatments in the UK.
- Fundraising News
Ella, 8, summits Snowdon in aid of SRUK
Eight-year-old Ella Hetherington has raised more than £2,000, after climbing Mount Snowdon with her family to support the SRUK.
- Fundraising News
Poppy takes on Junior Warrior course to raise hundreds for SRUK
An inspirational eight-year-old tackled the Junior Warrior 2025 challenge to raise hundreds of pounds for SRUK.
- Fundraising News
Epic 1,000-mile cycle from Land’s End to John O’Groats in support of SRUK
Darren South, from Bishopstoke, Eastleigh, has successfully completed an impressive 1,000-mile cycle from Land’s End to John O’Groats in just 10 days, raising vital funds and awareness for Scleroderma
- Fundraising News
World record European cycle attempt inspired by young brother
Kiall Kelly, one of next year’s SRUK London Marathon runners, is going above and beyond in his fundraising efforts by attempting a Guinness World Record.
- Research news
Almost one-third of RAIRDs patients face five-year wait for diagnosis
Some individuals with rare autoimmune rheumatic diseases (RAIRDs) encounter major barriers in accessing care and treatment with nearly one-third waiting over five years for a diagnosis.
- Policy and advocacy
Responding to the Government’s Spring Statement
The impact of the Government’s recent Spring Statement will be felt across our community. Many people living with Scleroderma and Raynaud's could face new hardship.
- Campaigns
Be Part of the Answer for Raynaud’s Awareness Month
This Raynaud’s Awareness Month, we are calling on the public to #BePartOfTheAnswer and join the thousands of people already involved in what we hope will be the largest-ever study into Raynaud's.
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