The latest news from SRUK

• Partnerships

Heat Holders and SRUK – The Perfect Partnership

Together, Heat Holders and SRUK can combine their expertise, passion, and resources to make a meaningful difference, offering practical solutions to those who are most affected by the cold.

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• Research news

SRUK welcomes MHRA rare diseases overhaul statement

We welcome the recent release of a new paper setting out the Medicines and Healthcare products Regulatory Agency’s (MHRA) intention to overhaul the rules for rare disease treatments in the UK.

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• Fundraising News

Ella, 8, summits Snowdon in aid of SRUK

Eight-year-old Ella Hetherington has raised more than £2,000, after climbing Mount Snowdon with her family to support the SRUK.

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• Fundraising News

Poppy takes on Junior Warrior course to raise hundreds for SRUK

An inspirational eight-year-old tackled the Junior Warrior 2025 challenge to raise hundreds of pounds for SRUK.

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• Fundraising News

Epic 1,000-mile cycle from Land’s End to John O’Groats in support of SRUK

Darren South, from Bishopstoke, Eastleigh, has successfully completed an impressive 1,000-mile cycle from Land’s End to John O’Groats in just 10 days, raising vital funds and awareness for Scleroderma

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• Fundraising News

World record European cycle attempt inspired by young brother

Kiall Kelly, one of next year’s SRUK London Marathon runners, is going above and beyond in his fundraising efforts by attempting a Guinness World Record.

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• Research news

Almost one-third of RAIRDs patients face five-year wait for diagnosis

Some individuals with rare autoimmune rheumatic diseases (RAIRDs) encounter major barriers in accessing care and treatment with nearly one-third waiting over five years for a diagnosis.

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• Policy and advocacy

Responding to the Government’s Spring Statement

The impact of the Government’s recent Spring Statement will be felt across our community. Many people living with Scleroderma and Raynaud's could face new hardship.

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• Campaigns

Be Part of the Answer for Raynaud’s Awareness Month

This Raynaud’s Awareness Month, we are calling on the public to #BePartOfTheAnswer and join the thousands of people already involved in what we hope will be the largest-ever study into Raynaud's.

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• Partnerships

Heat Holders and SRUK – The Perfect Partnership

Together, Heat Holders and SRUK can combine their expertise, passion, and resources to make a meaningful difference, offering practical solutions to those who are most affected by the cold.

View post

• Policy and advocacy

Energy companies must step up support for people with Raynaud’s

As high bills continue to threaten the health of those living with the debilitating condition; SRUK is appealing to energy companies to provide financial assistance

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• Research news

Sharing Data to Improve Lives: The SRUK Patient Registry Survey

SRUK's secure, anonymous database will contain health information for people diagnosed with scleroderma or Raynaud's aiming to improve clinical outcomes.

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