The latest news from SRUK

• Notizie sulla ricerca

Quasi un terzo dei pazienti RAIRD deve affrontare un'attesa di cinque anni per la diagnosi

Some individuals with rare autoimmune rheumatic diseases (RAIRDs) encounter major barriers in accessing care and treatment with nearly one-third waiting over five years for a diagnosis.

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• Politica e advocacy

Risposta alla dichiarazione di primavera del governo

L'impatto della recente dichiarazione di primavera del governo si farà sentire in tutta la nostra comunità. Molte persone affette da Sclerodermia e Raynaud potrebbero trovarsi ad affrontare nuove difficoltà.

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• Campagne

Be Part of the Answer for Raynaud’s Awareness Month

This Raynaud’s Awareness Month, we are calling on the public to #BePartOfTheAnswer and join the thousands of people already involved in what we hope will be the largest-ever study into Raynaud's.

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• Partnerships

Heat Holders and SRUK – The Perfect Partnership

Together, Heat Holders and SRUK can combine their expertise, passion, and resources to make a meaningful difference, offering practical solutions to those who are most affected by the cold.

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• Politica e advocacy

Energy companies must step up support for people with Raynaud’s

As high bills continue to threaten the health of those living with the debilitating condition; SRUK is appealing to energy companies to provide financial assistance

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• Notizie sulla ricerca

Sharing Data to Improve Lives: The SRUK Patient Registry Survey

SRUK's secure, anonymous database will contain health information for people diagnosed with scleroderma or Raynaud's aiming to improve clinical outcomes.

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• Notizie sulla ricerca

New hope for Raynaud’s treatments as researchers confirm genetic causes

Researchers have, for the first time, identified two genes that can increase the risk of developing Raynaud’s, hopefully lead to more effective treatments.

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• Notizie sulla ricerca

Study finds immunosuppressed people make antibodies after COVID vaccine

At the end of 2021, doctors and researchers from came together to carry out the MELODY study to investigate how well vaccines protect people who have a weakened immune system from COVID-19 infection.

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• Notizie sulla ricerca

Time to move on from ‘Doctor knows best’

Time to move on from 'Doctor knows best’ as study finds patient views not always valued, particularly when it comes to diagnosing conditions.

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