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A young woman with dark hair and a white shirt

Tamikea’s story

It all began when Tamikea went to A&E with severe chest pains and the doctors discovered she had pericarditis which they suggested was a result of Covid. But Tamikea was not convinced.
A woman with blonde hair and a pink top smiling

Maxine’s story

Once an enthusiastic walker who regularly exercised and was completely independent, Maxine’s diagnosis of Raynaud's and scleroderma has left her unable to work and in need of a carer.
A woman in glasses and a grey top smiling

Debbie’s story

Debbie first experienced Raynaud's as a teenager but her concerns were dismissed. It wasn't until years later that she was formally diagnosed by a sympathetic GP.
A young woman with red hair and wearing a black cardigan

Ellen’s story

Ellen discovered she had Raynaud’s during university when exam stress triggered Raynaud’s attacks. She has had to work on her mindset, to try and keep her body from attacking itself.
A smiling woman holding packaging for 'Snug Toes' - heatable slippers

Simi’s story

Simi was diagnosed with Raynaud’s when she moved to the U.K. She has since created her own business, SnugToes, providing heatable slippers for the Raynaud’s community.
A man wearing a white shirt with short sleeves

Avtar’s story

His hands were the key to his livelihood. Avtar Gill fitted car windscreens for celebrities and royals, until Raynaud’s affected his ability to work.
A woman wearing a long sleeved black jumper smiling

Helen’s story

Helen was diagnosed with Raynaud’s and limited systemic limited sclerosis just before the pandemic. She has also tested positive for the antibody for the more severe type of scleroderma.
Young boy holding small dog on his lap

Edward’s story

Following skin changes to his forehead aged around two, it took four years for Edward to be formally diagnosed with Parry Romberg syndrome and scleroderma en coup de sabre.
A two year old girl smiling whilst in hospital

Matilda’s story

Matilda, lives with scleroderma en coup de sabre. This is a form of localised scleroderma that mainly affects the skin and appears as a long, narrow line across the scalp and temple.
A woman wrapped up warm with two boot-shape mugs smiling

Claire’s story

Claire’s scleroderma has become progressively worse since her diagnosis, meaning she cannot work or do simple things like she used to, as she has lost mobility in her hands, fingers and lips.
A black woman with glasses wearing a yellow top and denim jacket smiling

Ruth’s story

Ruth was in her thirties when she had to give up a senior management role due to her complex set of conditions associated with scleroderma that left her without stamina and energy.
Man in pub wearing oxygen tubes

Scott’s story

Scott takes 250 cancer tablets a week but it's not cancer. His diffuse cutaneous systemic sclerosis has caused significant fibrosis of his lungs and he relies oxygen tanks to breathe.

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