Do You #KnowScleroderma?

12,000 people in the UK are diagnosed with scleroderma.

Over 5,000 waited 3 years or more for a diagnosis.

Watch our new animation to find out more.

Support #KnowScleroderma by fundraising, donating and helping to raise awareness.

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#KnowScleroderma

Our campaign aims to create greater awareness and understanding about the condition.

Find out about the symptoms and what you can do if you're worried.


Find out about the campaign
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Support #KnowScleroderma and fundraise.

We're asking that this summer when you organise a picnic with family, friends and colleagues that you do it to help take a step towards a cure for Scleroderma and Raynaud's.

Partner up for a picnic
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New research finds 48% of people with scleroderma are not confident their GP knows enough about scleroderma. Help raise awareness by telling your story.

I have a story to tell

Find out what is happening for World Scleroderma Day on 29 June, what you can do to help and the impact from the campaign so far.

World Scleroderma Day

Help raise awareness and #KnowScleroderma by putting up our poster in your local area, or downloading and handing round our flyer.

Download Your Poster and Flyer
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Research saves lives

To date we've invested over £10million into research but need your help. Scleroderma is still taking the lives of loved ones. Will you help us beat scleroderma? #KnowScleroderma, donate and fundraise to make a difference.

Donate to research