Do You #KnowScleroderma?

12,000 people in the UK are diagnosed with scleroderma.

Over 5,000 waited 3 years or more for a diagnosis.

Watch our new animation (right) to find out more.

Support #KnowScleroderma by fundraising, donating and helping to raise awareness.

Play Video
Play Video

As Scleroderma Awareness Month came to an end, we celebrated World Scleroderma Day on the 29th June. This is a day where we unite across the globe to celebrate our inspirational community.

We collaborated with Actelion and 4 wonderful women affected by scleroderma to create an awareness video, paying homage to Paul Klee, a famous artist who was impacted by the condition.

#KnowScleroderma

Our campaign aims to create greater awareness and understanding about the condition.

Find out about the symptoms and what you can do if you're worried.


Find out about the campaign
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Play Video


Sue Farrington and Lynn Steblecki spoke to local and national radio about life with scleroderma. They spoke with 17 radio stations reaching 3.5 million listeners.

Take a listen to an extract from the radio podcast.

You can listen to the full podcast on our Facebook page

Support #KnowScleroderma and fundraise.

We're asking that this summer when you organise a picnic with family, friends and colleagues that you do it to help take a step towards a cure for Scleroderma and Raynaud's.

Partner up for a picnic
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New research finds 48% of people with scleroderma are not confident their GP knows enough about scleroderma. Help raise awareness by telling your story.

I have a story to tell

Find out what is happening for World Scleroderma Day on 29 June, what you can do to help and the impact from the campaign so far.

World Scleroderma Day

Help raise awareness and #KnowScleroderma by putting up our poster in your local area, or downloading and handing round our flyer.

Download Your Poster and Flyer
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Research saves lives

To date we've invested over £10million into research but need your help. Scleroderma is still taking the lives of loved ones. Will you help us beat scleroderma? #KnowScleroderma, donate and fundraise to make a difference.

Donate to research