Thank you for considering leaving a gift to SRUK in your Will.

A gift in your Will is a powerful and effective way to support the vital work of SRUK in funding medical research and supporting those affected by scleroderma and Raynaud's both now and in the future.

Once you have remembered your loved ones in your Will, we hope that you'll consider leaving a gift to SRUK.

We hope the information here is useful to you. If you have any other questions, or you would prefer to discuss it with someone in more detail, please contact us on 020 3893 5998.  

How would a gift in my Will help SRUK?

SRUK receives no government funding, so donations are hugely important to us.

Financial gifts from supporters such as legacies mean we are able to fund and extend vital research into all aspects of scleroderma and Raynaud's.

They also mean we can continue to offer advice and emotional support, and practical help like medical equipment, to people who are living with the conditions.

Your legacy would really make a difference to people with scleroderma and Raynaud's. No matter how small or large the amount, it will have a positive impact.

Isn't it hard to make a Will?

Making a Will is a very straightforward process and not as costly as many people assume. If you want to make a Will, you will need to make an appointment with a solicitor who should help you through the process.

There is information online that can help you learn more about writing a Will from Which, Citizens Advice and the Government.

What kind of legacy can I leave?

There are various types of legacy, the following are a few of the main types: Residuary, Pecuniary and Specific.

  • A Residuary Legacy is where you can leave residue or part residue of an estate to SRUK once all gifts, debts, taxes and costs associated with your estate have been taken out.
  • A Pecuniary Legacy is where you can leave a specified fixed amount of money.
  • A Specific Legacy is where you can gift a specific item, such as a piece of art or a special collection to the charity. The charity will then either use the item left to the charity or sell the item with the proceeds for the benefit of the charity.

But what if I already have a Will? Can I still leave a legacy?

If you already have a Will, changing it to include our charity is straightforward.

Your solicitor can easily draft an addendum, called a Codicil. Codicils are usually cheaper than writing a new Will and by using a Codicil, you can change anything from a single word to many different sections of your Will.

It is highly recommended that you only use Codicils for very small changes, though, as they can complicate your Will. For more assistance or information on this consult a solicitor.

What about tax?

The only tax that your beneficiaries will have to pay is Inheritance Tax and that is only if your estate is over a certain value. If they find that they do have to pay, 40% will be deducted from the portion of your estate that is over the threshold. However, this threshold can change so make sure to keep up-to-date with any changes to the rules so that your loved ones only pay what Inheritance Tax they need to.

Find out more information on Inheritance Tax and how it works

When can I update my Will?

Your Will can be updated at any given time, just contact your solicitor. It is recommended that your Will should be reviewed around every three to five years to make sure that it still meets your needs.

If you experience a life changing event such as marriage, divorce, the birth of a child, grandchild, a new pet, a new house or the death of a beneficiary, your Will should be reviewed and updated to reflect your changed circumstances.

Where can I keep my Will?

Your solicitor (or Will writer) may offer to keep your original Will safe for you. Make sure that you keep at copy in a safe place too, along with any other information that your executors will need about your property, accounts and any investments or insurance policies that you may have.

The Scleroderma Society or the Raynaud's and Scleroderma Association is already a beneficiary of my Will. Do I need to change it?

SRUK was formed in March 2016 when two existing charities merged: The Scleroderma Society and the Raynaud's and Scleroderma Association.

If you have already written a legacy for one of these two charities into your Will, don't worry. Your gift will not be lost and you do not need to make a change to your Will. The two charities will remain registered, but will not be operational. So when your gift is received, it will be passed on automatically to SRUK.

If you are going to leave a gift to us in your Will, or have done already, we would like to say thank you properly. Please get in touch on 020 3893 5998.

Glossary of legal terms

  • Beneficiary/ Benefactor: an individual (or an organisation) who receives a gift in a Will.
  • Codicil: a document that allows a simple update or change to the Will.
  • Estate: all of a person's possessions at the time of their death, including money and property.
  • Executor: the person who has been appointed to carry out the instructions in a person's Will.
  • Inheritance Tax: a tax paid if a person's estate is worth more than £325,000 when they die (as of July 2015).
  • Legacy: a gift left to a person (or an organisation) in a will.
  • Pecuniary Legacy: a gift of a fixed amount of money.
  • Residuary Legacy: a gift consisting of the part of an estate.
  • Solicitor: A legal practitioner who deals with legal matters.
  • Specific Legacy: A gift of a particular possession or item.