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Help raise awareness of scleroderma by telling your story
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To build on the knowledge on the Raynaud's condition gained during February, Raynaud's Awareness Month, for Scleroderma Awareness Month in June 2017 we asked you to complete a short survey about your diagnosis.
We know that "early identification and appropriate monitoring of patients with systemic scleroderma is critical so that active disease can be controlled and tissue damage prevented or delayed." (1)
We'll report back here from the results of the survey and will state facts and figures about the length of time it currently takes to get a diagnosis.
Reference: (1) Systemic sclerosis--challenges for clinical practice. Nat Rev Rheumatol. 2013 Feb;9(2):90-100. McMahan ZH1, Hummers LK
Help raise awareness of scleroderma by telling your story
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First ever Raynaud's mobile clinic providing earlier diagnosis of scleroderma
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