Support group leaders

Our support group leaders are all volunteers with experience of Scleroderma or Raynaud's.

Lindsay Wilkinson

Newcastle and Northumberland

I'm 52 years old. I was diagnosed with CREST syndrome in 2010 following a serendipitous meeting with my GP who had just read an article on that now defunct acronym. I had previously been misdiagnosed with ME in 1997, so have had Sclerosis for over 20 years as the symptoms have been affecting me since my 20s. It has affected me profoundly-especially my physical/mental health-but very recently I bought a puppy and he has helped to get my physical fitness back on track as well as my mental state. For queries about this Support Group use this form to contact us

Lucy Reeve

Norfolk

My name is Lucy Reeve and I am the local contact for Norfolk. I have lived just outside Norwich all my life, and so have most of my family and friends. I have a mixed connective tissue disease which first came to light in 1994, when I experienced severe inflammatory arthritis. Then in 2004 I was diagnosed with Limited Systemic Sclerosis, and latterly I have also developed features of Lupus. I am an Occupational Therapist, and I have always worked in Rheumatology. Due to my health situation I now work very part-time but I like spending time with friends, drinking tea and eating cake, reading, cuddling my cat and knitting. I also have an addiction to home design programmes. For queries about this Support Group use this form to contact us

Jane Beach

West Midlands

I have had Raynaud's phenomenon for many years but when this became much worse I went again to see my GP. After tests I found out I had antibodies and some symptoms associated with Scleroderma, and have since been told I am on the spectrum. I knew nothing at all about Scleroderma and like a lot of people, my first port of call was the Internet. After all the scary information I found SRUK. They were so helpful and supportive that when I learned that there wasn't a local support group, I volunteered! We meet 3 to 4 times a year, normally in Birmingham centre and have email or phone contact in between. For queries about this Support Group use this form to contact us

Diane Unsworth

Merseyside

I was diagnosed with Diffuse Systemic Scleroderma on 29 June 2012, World Scleroderma Day. I have GI, pulmonary, renal involvement and also secondary Raynaud's, hypertension, angina and more recently small vessel disease. I first found SRUK's website when I was trying to gain information about my condition. Since then I have met up with a local contact, which helped me, to becoming one myself. Support is so important when faced with a chronic condition and I have been so lucky with mine from the clinical side to all my family and friends and of course SRUK! I am looking forward to using my own experiences to help and support others who are going through a similar journey. For queries about this Support Group use this form to contact us

Rita Boulton

Bedfordshire

I am a retired 63 year old and have been suffering from Raynauds and limited scleroderma for seven years. I joined both the RSA and the Scleroderma Society in the first year after being diagnosed in order to find out as much about the condition as possible. I started the local support group some three years ago, shortly after volunteering as a local contact, when I had a phone call from a lady so pleased to have someone to talk to that understood how she was feeling. We have met up every 2 months since. For queries about this Support Group use this form to contact us

Celia Bhinda

South London

I was diagnosed with scleroderma over twenty years ago, and although it has been a life-changing experience, I have found that having accepted the condition and having adjusted to it, I have been able to live life as near normally as possible. In this respect, the Scleroderma Society (SRUK) has been extremely helpful over the years with telephone support, its ongoing informative and encouraging publications, and in enabling those affected to meet others in their local areas for mutual support. For queries about this Support Group use this form to contact us

Belinda Thomson

South Wales

I live in Cardiff and have had scleroderma for over 16 years. My first contact with the society was to join and speak to someone with scleroderma, which I found really reassuring, and the information I was given was excellent. I then became part of what we fondly call the help liners about 14 years ago, which I find very rewarding. It's nice to speak to other people who are in the same situation as yourself, so if you would like to have a chat give me a call. For queries about this Support Group use this form to contact us

Tracey James

Portsmouth, UK

Location: Portsmouth, caters for Hampshire area. Support is for: People with diagnosis of Scleroderma or Raynaud's, their family friends or carers. Meeting times: Flexible. Or phone call support. Support Leader: My name is Tracey and I have been a member of the Scleroderma and Raynaud's UK since 2001 when my beloved dad, Robert, was diagnosed with the condition. I am a teacher by day. I love music and live gigs I have an extensive cd and vinyl collection, I am an Archer's fan (do not watch much TV but love radio 4 and 6). I love walking and cover many miles each week. I also enjoy reading, current affairs and modern art. For queries about this Support Group use this form to contact us

Mike Corbett

Exeter

My wife Alison and I live in Exeter. I was diagnosed with Limited Cutaneous Systemic Sclerosis ten years ago, as is usually the case I now know I had the symptom's for a number of years prior. Along the way I have picked up a couple of other associate diseases G.A.V.E. Liver cirrhosis (M3 anti body), and Scleroderma/Intestinal Failure. My aim is to lead a positive life and I am still working all be it part time for Exeter University. As a Local Support Contact Ali and I meet one other sufferer regularly for coffee and a catch up. For queries about this Support Group use this form to contact us

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