Raynaud’s is a chronic condition that affects blood circulation. It causes painful ‘attacks’ in response to cold temperatures and stress, which is when the blood supply temporarily stops flowing to the body’s extremities, such as the hands, feet, ears and nose. These attacks are characterised by the skin changing colour to white before taking on a blue-ish tinge, and the affected areas feeling numb. As the blood returns, the skin changes colour again to red and the sensation can be extremely painful.
Raynaud’s can be a debilitating condition; it affects fine motor skills that make everyday tasks like buttoning up a coat, preparing food, using a smartphone or handling bank cards extremely difficult. In more severe cases, it can also make walking and driving virtually impossible. One of the best ways to prevent Raynaud’s attacks is to keep warm, but with the continued high cost of energy, this is becoming impossible for many.
Patience Bradley, 59, was diagnosed with Raynaud’s when she was 16. The model and author from Holywood, Northern Ireland, who also lives with the autoimmune condition scleroderma, is backing SRUK’s call to keep heating affordable for those with the condition.
My hands can go into an attack at the slightest thing. When they get cold, I have no feeling in them and end up dropping things. I also have to drive an automatic car as I can struggle with changing gears when cold.
Energy companies can provide additional assistance to people they class as ‘vulnerable’ through the Priority Services Register and other types of support schemes. This should include people with long-term health conditions, but five out of six of the biggest energy companies in the UK contacted by SRUK refused to confirm if they recognise Raynaud’s as an eligible condition. This is despite people with Raynaud’s relying on their heating to stay well.
Sue Farrington, SRUK Chief Executive, said:
Too often we hear how our energy suppliers are banking huge profits while millions of people are struggling to pay their bills. For many people with Raynaud’s, this is putting their health at risk.
Raynaud’s is an incurable condition with limited treatment options that we know worsens in cold temperatures, so it’s essential that people can stay warm in their own homes. Sadly, many people with Raynaud’s tell us they’re choosing to keep their heating off because they worry about their bills. Others are choosing to cut back on food to prioritise their energy bills.
People should not be suffering in their own homes because they are worried about their bills. We need energy suppliers to step up and provide support for those living with Raynaud’s so that they can be comfortable without having to choose between health and warmth.
In letters to six of the UK’s main energy companies – British Gas, EDF Energy, E.ON Energy, Octopus Energy, Ovo Energy and ScottishPower – SRUK asked that they recognise Raynaud’s as a condition requiring extra support. Only one supplier, EDF Energy, confirmed that they already class Raynaud’s as a vulnerability that is eligible for additional support, including help with bills.
At the same time, the charity is urging the government to take action ahead of the Spring Budget, by expanding the Cost of Living Payment criteria to include people with Raynaud’s and exploring practical solutions to help people living with Raynaud’s through the winter, such as a national roll-out of the Warm Home Prescription. The charity says support could be funded by using a proportion of the money raised by the ongoing Energy Profits Levy as well as other options such as the Household Support Fund.
SRUK re-ran its energy survey in 2023 between 24.10.2023 and 10.11.2023. In total, 1,198 people answered the survey, of which 1,162 reported living with Raynaud’s. Results included:
- 51% of people living with Raynaud’s said it had become more difficult to pay their energy bills compared to this time last year
- 29% reported that they were finding it equally as difficult as last year to pay their energy bills
- 52% of respondents living with Raynaud’s believed stress caused by the cost-of-living crisis has been a major trigger of Raynaud’s attacks this year
- 62% said they have experienced a Raynaud’s attack due to choosing not to put their heating on because of the cost
- 57% said they had not received any additional help through the Cost of Living Payments this year
- 57% of people living with Raynaud’s do not trust the government to act in the best interests of the public when it comes to tackling the cost-of-living crisis
- To try to make their energy bills more affordable, more than one in 10 (13%) of respondents living with Raynaud’s are buying less food to prioritise their energy bills