19. "Scleroderma and my grandmother…
the hidden condition"
by Dontaira Terrell
To close out the decade, we shared our 19 most popular stories from 2019, building up to our most read piece of the year.
While some of you will have read these stories already, we'd really appreciate it if you could share your favourites to help us spread the word about scleroderma, and empower everyone affected by scleroderma and Raynaud's to feel confident in managing their condition.
19. "Scleroderma and my grandmother…
the hidden condition"
by Dontaira Terrell
18. "Is Botox an option for Raynaud's?"
17. "My fear of cold"
Sara Szigeti's story
16. "The role of the lymphatic system
in scleroderma"
15. "Hannah's story of localised
scleroderma"
14. "Research into gut involvement in
systemic sclerosis"
13. "Can herbal medicine help Raynaud's
phenomenon symptoms"
12. "Sylvia story of using diet and exercise
to thrive with scleroderma"
11. "Stem cell transplants may be the next
new therapy for scleroderma"
10. "A novel study to detect early
scleroderma symptoms has been funded
by SRUK"
9. "Oral and dental involvement in
scleroderma: what happens and how
it can be managed"
8. "Can lung fibrosis be stopped?"
7. "Why early detection of scleroderma
matters"
6. "6 tips for self-management"
5. "A guide to Iloprost treatment"
4. "Understanding vascular involvement
in systemic sclerosis"
3. "Ex-professional footballer Travis Munn
talks about his cutting edge treatment"
2. "The impact of Raynaud's phenomenon
on mental health"
1. "New study suggests low vitamin D
levels linked to scleroderma"
Thanks for reading, and supporting us over the past year. Please let us know if there is a story you think we should be covering in 2020, or share your story with us to help us raise awareness.
If you are interested in supporting our work, then please donate today. We rely on the generosity of our community to continue to support groundbreaking research into both scleroderma and Raynaud's.
Monday 1st August 2022
Evusheld is an antibody treatment designed to prevent patients from contracting COVID-19, and can provide protection for immunocompromised and immunosuppressed people that haven’t mounted a proper response to the vaccine. SRUK is supporting the call for the UK Government to procure and provide Evusheld to patients in the UK. Find out about how you can help on this page.
Friday 15th July 2022
July marks six months since Scleroderma & Raynaud’s UK launched STAR, the Symptom Tracking App for Raynaud’s, which enables members of the SRUK community to track their Raynaud's attacks and directly contribute to essential scientific research into the condition. Here’s a breakdown of what we’ve learnt so far, thanks to the STAR community!
Wednesday 29th June 2022