19. "Scleroderma and my grandmother…
the hidden condition"
by Dontaira Terrell
Round-up of the year's top SRUK News stories
To close out the decade, we shared our 19 most popular stories from 2019, building up to our most read piece of the year.
To close out the decade, we shared our 19 most popular stories from 2019, building up to our most read piece of the year.
While some of you will have read these stories already, we'd really appreciate it if you could share your favourites to help us spread the word about scleroderma, and empower everyone affected by scleroderma and Raynaud's to feel confident in managing their condition.
18. "Is Botox an option for Raynaud's?"
17. "My fear of cold"
Sara Szigeti's story
16. "The role of the lymphatic system
in scleroderma"
15. "Hannah's story of localised
scleroderma"
14. "Research into gut involvement in
systemic sclerosis"
13. "Can herbal medicine help Raynaud's
phenomenon symptoms"
12. "Sylvia story of using diet and exercise
to thrive with scleroderma"
11. "Stem cell transplants may be the next
new therapy for scleroderma"
10. "A novel study to detect early
scleroderma symptoms has been funded
by SRUK"
9. "Oral and dental involvement in
scleroderma: what happens and how
it can be managed"
8. "Can lung fibrosis be stopped?"
7. "Why early detection of scleroderma
matters"
6. "6 tips for self-management"
5. "A guide to Iloprost treatment"
4. "Understanding vascular involvement
in systemic sclerosis"
3. "Ex-professional footballer Travis Munn
talks about his cutting edge treatment"
2. "The impact of Raynaud's phenomenon
on mental health"
1. "New study suggests low vitamin D
levels linked to scleroderma"
Thanks for reading, and supporting us over the past year. Please let us know if there is a story you think we should be covering in 2020, or share your story with us to help us raise awareness.
If you are interested in supporting our work, then please donate today. We rely on the generosity of our community to continue to support groundbreaking research into both scleroderma and Raynaud's.
SRUK latest news
See all newsFriday 17th September 2021
2021 Virtual Conference Round-Up
A series of talks took place throughout the day, covering areas of research funded by SRUK, advice on symptom management, and discussions about the future. This article offers a brief overview of each talk as a taster, and in the coming months they will be made available online.
Thursday 16th September 2021
Living with lung disease: Georgina's story
September is Pulmonary Fibrosis Awareness Month. Pulmonary fibrosis (PF) is also known as interstitial lung disease (ILD) and is the most common form of lung involvement in SSc. This can occur at any time, although early detection often leads to much better outcomes. This is Georgina’s story of living with lung disease, which has a dramatic impact upon her life.
Wednesday 1st September 2021
The OCTAVE Study: Scaling up our understanding of vaccine effectiveness in people living with autoimmune conditions
OCTAVE study reveals how effective COVID-19 vaccinations are in immunocompromised participants