News

Tuesday 19th December 2023

The Mouth in Scleroderma - Tools to Help Dentists Better Understand Your Condition

In 2021 SRUK funded a research project led by Professor Liz Walker, based at the University of Hull, entitled 'Scleroderma in the Mouth: Improving Pathways to Care'. The project focusses on improving oral and dental care in Scleroderma to help improve quality of life. The team have recently produced some useful materials to foster greater awareness of the oral manifestations of Scleroderma amongst dentists. Read on to access a video and information card which you can show to your dentist to help them learn more about your condition and how it affects your oral health.

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Monday 18th December 2023

EULAR publish new recommendations for non-pharmacological management in Systemic Sclerosis

EULAR have recently developed new recommendations regarding non-pharmacological management of Systemic Sclerosis. Non-pharmacological management approaches aim to ease disease symptoms and improve quality of life, or help to prevent a patient’s condition from worsening. By working with healthcare professionals and patients, EULAR have published a new set of recommendations, which have the potential to improve the management of Scleroderma and the quality of life of patients. Read on to find out more!

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Tuesday 28th November 2023

Sharing Data to Improve Lives: The SRUK Patient Registry Survey

SRUK is developing a Patient Registry, with the aim of improving outcomes for people diagnosed with Scleroderma or Raynaud's. Our Registry will be a secure, anonymous database, containing health information about people living with the conditions. It will be used to improve our understanding of Scleroderma and Raynaud's and how different people are affected over time, to help accelerate research into new and better treatments designed to improve quality of life. Read on to find out what we learned through the SRUK Patient Registry Survey, and how it will help shape our Patient Registry.

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Wednesday 11th October 2023

New hope for Raynaud’s treatments after researchers confirm genetic causes

Researchers have, for the first time, identified two genes that can increase the risk of developing Raynaud’s.

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Tuesday 3rd October 2023

The British Society for Rheumatology Annual Conference 2023: Research Round-Up

Earlier in the year we attended the British Society for Rheumatology Annual Conference, joining over 2,300 attendees which included leading doctors, nurses, and healthcare professionals working in the field. The conference was a fantastic opportunity to raise awareness of Scleroderma and Raynaud’s, and we got the chance to hear about some of the latest research aiming to improve our understanding of the conditions and open new avenues of care. Read on to learn more about some of the exciting projects we heard about at the conference!

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Wednesday 30th August 2023

MELODY: Study finds immunosuppressed people make antibodies after COVID-19 vaccination

People with weakened immune systems, including those with Scleroderma, are at increased risk of developing a severe infection after being exposed to Covid-19. Vaccinations and booster doses have been offered to immunosuppressed patients since the roll-out of the NHS vaccination programme in 2020. But how well do they work in people who have weakened immune systems? Read on to hear the exciting findings from the MELODY study!

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Wednesday 19th July 2023

The OASIS project: SRUK-funded research builds evidence for new methods of skin assessment in Scleroderma

A recently completed SRUK-funded research project, led by Dr Peter Worsley at the University of Southampton, has built evidence for the use of non-invasive tools which can accurately measure the health of the skin in Scleroderma. The findings of the project have the potential to drive forward the use of new, non-invasive skin assessment methods, using tools employed in the assessment of other conditions that affect the skin, which could be an important step towards improving the diagnosis and monitoring of the condition.

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Tuesday 30th May 2023

The CRISTAL Index: Improving the assessment of new scleroderma treatments in clinical trials

One of SRUK’s central objectives is to advance research that will lead to the development of new and effective treatments. But how do we make sure that new therapies will be effective? Recently, SRUK has funded a US-based research project that will help to ensure that potential treatments are effective in ways that are relevant to both patients and clinicians. This could be vital in giving people living with the condition access to treatments that work for them.

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Wednesday 10th May 2023

Imperial College London's 'Science in Medicine School Teams Prize 2023' now open for entries!

The Scleroderma and Raynaud’s UK sponsored 'Science in Medicine School Teams Prize 2023' contest is now open for entries. The contest aims to engage sixth form school students with science in medicine, and challenges students to prepare an ePoster with a novel vision on how to promote the health and well-being of individuals with Scleroderma and/or Raynaud’s. If you're interested in entering, or know someone in sixth form who might be, read on to find out more!

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Tuesday 28th March 2023

British Society of Rheumatology announce plans for new revision of Systemic Sclerosis Guideline

Last week, the scope for a new revision of the British Society for Rheumatology’s systemic sclerosis (SSc) guideline was published in the ‘Rheumatology: Advances in Practice’ journal. SRUK are excited to be playing a role in this timely and relevant project. Read on to find out more about the BSR guideline and how it’s revision could benefit you!

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